Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroparesis...so They Say.


stacyrubel

Recommended Posts

stacyrubel Newbie

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I do not have gastroparesis, but I think that there have been a few others who have posted in the past. Try doing a search within this forum.

It is hard waiting for test results. Assuming your doctor took plenty so samples during your endoscopy, you could start the gluten free diet or enjoy gluten until you get the results ( that is what I did since my only known symptom was anemia). If you do have celiac disease, it can really slow down your digestion (or speed it up), so the gastroparesis could easily be related to celiac disease.

Juliebove Rising Star

I have gastroparesis.  I do not have celiac or even wheat or gluten issues.  But...  I do have mulitple food intolerances and if I eat eggs, dairy or some other things, I can get the big D.  I don't usually have headaches but I do occasionally have lethargy.

 

When my gastroparesis is the worst, I will usually just start to feel off.  My stomach won't necessarily hurt or feel sick.  It just won't feel right.  Then usually I will feel saliva backing up.  And I need to grab the pukey bowl and then head to the toilet.  I will begin to vomit but if it is really bad, it will come out the other end as well, often at the same time.  In that case, my stomach will hurt and very badly.  I can see it having violent spasms.  Oddly enough if I am not feeling right and I lie down in bed, that will get the ball rolling.  And of course it usually strikes me around the time that I need to go to bed.  I will try to stay up just in case but exhaustion will overtake me.  Then by morning I will be exhausted from all of the violent vomiting.

 

Following an episode, I mainly just eat plain white rice and perhaps a little applesauce.  I used to have chicken broth until I learned of my chicken intolerance.

 

From what I have read, Celiac can cause gastroparesis.  So it is possible.  But the most common cause is diabetes.

nvsmom Community Regular

I know that my gut is slow to empty but I assumed it was due to hypothyroidism and celiac disease.  

 

When I was pg, I could vomit meals that I had eaten 24 hours earlier, and I can fast for a few days and still have bowel movements... I'm like a camel with food. LOL

 

As the others said, I have seen that as a symptom of celiac disease too.  :(  

 

Good luck with the biopsy.

BritChick Newbie

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?

Stacy, I was diagnosed with gastroparesis in 2009.  My main complaints at the time were frequent vomiting after eating and a lot of stomach acid that no acid refulx meds could cure.  I did a stomach emptying test that showed slow emptying and was prescribed reglan.  After reading up on reglan I was too frightened to take it and ended up in the alternative medicine arena.  I've been gluten free for over 11 years now.  Never been tested for celiac but if I eat gluten I have abdominal cramping and diarrhea and blisters that break out behind one of my knees.  Avoiding gluten cured all of that and the sudden onset in 2009 of vomiting and acid was a huge emotional upset for me since I thought I'd figured out how to eat and be healthy and feel good.  I went to the ER several times over six weeks and had every test imaginable (gallbladder, endoscopy etc.) and all looked fine other than stomach inflammation on the endoscopy results.  A natural medicine practitioner was convinced I was dealing with a gallbladder issue that couldn't handle certain fats/proteins and told me she was certain I was blood type A and needed to try vegetarianism.  Turned out she was right.  I've lived on a diet avoiding high fat foods in addition to no gluten and no meat and been perfectly fine since 2009.  Fish, eggs, cheese and yoghurt seem to be OK although I have to go easy on the cheese and yoghurt amounts.  I am actually in the middle of a relapse right now due to overconsumption on many fronts including chocolates and wine over the Holidays, although the final straw seems to have been a small helping of ham I decided to try a week and half ago.  I spent the night with the toilet after eating the ham.  Apparently I needed a reminder that meat is not my friend.  What I've learned over the years is that there can be many causes of food digestion problems, and sometimes changing your diet is all that is needed.  This doesn't work for everyone, but if you can feel better avoiding certain foods then it's totally worth it.  There's lots of resources for how to start a food intolerance elimination diet - that's what I did 11 years ago for the gluten.  Intolerance or allergy to gluten seems to often go hand in hand with intolerances or allergies to other foods.  Good luck to you, Joanna

  • 3 weeks later...
Rosiesallergies Rookie

My gastroparesis was diagnosed just before my Celiac diagnosis. My gallbladder was also removed at that time. This all happened many yeArs ago. I was prescribed Reglan which worked like a charm for a long while. My doctor informed me there's a medicine lime Reglan that's sold in Canada, but the Canadian version is much more effective and safer than Reglan. I kept taking the Reglan for probably a year. Now when I here all the reports about Reglan I'm concerned. I found adjusting my diet to easy to digest, low fat, gluten free foods made a huge difference. Digestive supplements also help. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,873
    • Most Online (within 30 mins)
      7,748

    oscarbolduc
    Newest Member
    oscarbolduc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.