Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gurgles, Neck Pain, Headache Ugghh

answerseeker

By answerseeker
in Coping with Celiac Disease

Recommended Posts

Adalaide Mentor
Adalaide
Posted

There are lots of ways to treat endo if it turns out you have it. It can cause pain in really weird places. I end up spending 1-2 days a month in bed feeling sorry for myself in pain. At least once a year it's so bad I can literally not walk for at least half a day.

 

I used hormone birth control for a long time as treatment and it was quite effective. I can no longer use it and instead have turned to home remedies and such to get me through until I can find a suitable surgeon I like. I am electing for radical surgery because of my age and circumstances, and simply having my uterus removed. I don't need nor desire a uterus or period any more, as they are nothing but trouble and pain.

 

If your doctor diagnosis you, you'll be able to work with them to find the best course of action for you. But use the internet and reputable websites with valid medical information to be informed so that you aren't just doing what you're told.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

There are lots of ways to treat endo if it turns out you have it. It can cause pain in really weird places. I end up spending 1-2 days a month in bed feeling sorry for myself in pain. At least once a year it's so bad I can literally not walk for at least half a day.

I used hormone birth control for a long time as treatment and it was quite effective. I can no longer use it and instead have turned to home remedies and such to get me through until I can find a suitable surgeon I like. I am electing for radical surgery because of my age and circumstances, and simply having my uterus removed. I don't need nor desire a uterus or period any more, as they are nothing but trouble and pain.

If your doctor diagnosis you, you'll be able to work with them to find the best course of action for you. But use the internet and reputable websites with valid medical information to be informed so that you aren't just doing what you're told.

I agree, don't just go with the first treatment your doc tosses out. Start with the least invasive approaches, my advice. If they do a laparoscopy they'll probably try to remove what they can during the procedure.

answerseeker Enthusiast
answerseeker
Posted
  • Author

My OB/GYN is going to revisit the possibility at my 6 week ultrasound. The report said the cyst was possibly endometrieom.

Right now they are looking at my kidneys and bladder. Along with this pain I had blood and protein in my urine and it's foul smelling. I'm also lightheaded.

I'll update when I find out what's going on! At least I know where to come for advise if I have endo!

pricklypear1971 Community Regular
pricklypear1971
Posted

My OB/GYN is going to revisit the possibility at my 6 week ultrasound. The report said the cyst was possibly endometrieom.

Right now they are looking at my kidneys and bladder. Along with this pain I had blood and protein in my urine and it's foul smelling. I'm also lightheaded.

I'll update when I find out what's going on! At least I know where to come for advise if I have endo!

Well, bladder and kidney issues can definitely make you sick and miserable. I hope they figure it out soon, and you feel better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,110
    • Most Online (within 30 mins)
      7,748
    Pumpkin68
    Newest Member
    Pumpkin68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      High DGP-A with normal IGA

      By Wheatwacked · Posted

      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.