Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia Anyone?

angieInCA

By angieInCA
in Related Issues & Disorders

Recommended Posts

cyclinglady Grand Master
cyclinglady
Posted

My vitamin D was 23 last time and I'm taking 1000 II daily.I'm wondering if I should be taking more. It's funny when I was 23 and began having arthritic symptoms, the Dr. put me on B6. But let. me back way up. Did anyone lose their baby teeth for no reason?? When I was 5 all my baby teeth had turned black and I lost them. Many dental problems all my life and skeletal problems. They've been trying to "fix" the anemia since 2011. Any thoughts??

I have two anemias: thalassemia (genetic) and iron deficiency which did not respond to iron supplements due to undiagnosed celiac disease. Vit. D was also low even after taking 2,000 units a day! Everything has improved with my celiac disease diagnosis and gluten-free diet. I also have osteopenia and they suspect osteoporosis in my upper back since I had a fracture doing nothing! I hope you find answers to your health issues.

Never give up!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Oh, my mom has Fibro and Graves (thyroid) but recently tested negative to celiac disease. She does not believe that foods could trigger symptoms even though her kids and grand kids (some) have allergies/asthma/food intolerances to the same things (i.e. Nuts, eggs, milk proteins). I completely disagree!

somanyquestions Newbie
somanyquestions
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

somanyquestions Newbie
somanyquestions
Posted

Ive known it had something to do with food since way back. Wheat in particular because I'd have arthritic symptoms after eating it. Strangely the whole wheat (healthy) cereals, breads etc were the only kind I wanted. I'm thankful for this forum cause I really felt like a hypochondriac!!!!

cyclinglady Grand Master
cyclinglady
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

pricklypear1971 Community Regular
pricklypear1971
Posted

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

 

Thal can go the other way. You can have high rbc, low almost everything else and good or high iron. If a doc runs a "basic" cbc s/he may assume you are anemic, when you really are overloaded or fine on iron.

 

My son is fine, my husband is overloaded. Life just got interesting around here.

cyclinglady Grand Master
cyclinglady
Posted

Thanks for adding more information on Thalassemia!  I was being very self-centered and just though about my issues with it!   :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,049
    • Most Online (within 30 mins)
      7,748
    ChloeT
    Newest Member
    ChloeT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Stephanie Wakeman · Posted

      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Pepsid alternative

      By milana · Posted

      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      gluten-free self diagnosed journey so far as well as what triggers. Eye crying like peeling onions?

      By Scott Adams · Posted

      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...