Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis Question?

zip2play

Recommended Posts

zip2play Apprentice
zip2play
Posted

I had hiatal hurnia surgery and gall bladder removal in 2003. Since then I have had horrible gas/bloating, stools have become odd at best. I was diagnosed with IBS and have tried to eliminate diary and such that make IBS worse. I am also on Zelnorm. At the same time I have been tested for Thyroid issues because I have horribly fatigued all the time. I recently read an article on Celiac and I believe that is a more accurate description of what I have.

My question is, what tests should I have the DR run? Start with the blood tests? I have read that negative blood results are not necessarily accurate. So do I also request a biopsy?

I truly want to end my issues. Some days are horrible. My stomach hurts so bad I don't eat. Other days aren't too bad. But I am a MOM of 2 and I want to be able to function better. The fatigue is probably the worst of my symptoms. I seem tired all the time. I even sleep 7 to 8 hours a night. I exercise regularly so IMHO I shouldn't be this fatigued. I was labeled IBS in my opinion, b/c it was an easy diagnosis. But I want definate answers.

Anything you can tell me would be greatly appreciated!

Thanks!

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zip2play Apprentice
zip2play
Posted
  • Author

I am having problems finding this post???

jenvan Collaborator
jenvan
Posted

You definitely have some celiac symptoms. The easiet route is to start with the blood test. Go here to see info on getting tested, it is an easy blood test most any doctor can have run. Don't let your doctor discourage you either--its your body! Open Original Shared Link Sorry for all your pain and discomfort! Keep up posted on your search!

zip2play Apprentice
zip2play
Posted
  • Author

I have done a little food testing of my own. I typically eat eggs for breakfast. Today I had 1/2 of a bagel with it. NOW my stomach is killing me! :unsure:

jenvan Collaborator
jenvan
Posted

Just make sure if you get tested you are consuming gluten... meaning, don't go gluten-free for several weeks and then get tested--the results wouldn't be accurate.

zip2play Apprentice
zip2play
Posted
  • Author

Thanks! I had read you definitely need to be eating it at the time!

tarnalberry Community Regular
tarnalberry
Posted
My question is, what tests should I have the DR run?  Start with the blood tests?  I have read that negative blood results are not necessarily accurate.  So do I also request a biopsy? 

<{POST_SNAPBACK}>

Getting tested is a good idea. Starting with the blood tests is the right way to go; the standard panel is anti-gliandin IgA, anti-gliandin IgG, total IgA, tTg (tissue transglutimerase), and EMA (endomyosial antibodies). Your doctor can look them up if need be. ;-) Do not go off gluten before the testing!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zip2play Apprentice
zip2play
Posted
  • Author

Something else is, I am COLD all the time! I mean, COLD!?!?!

jenvan Collaborator
jenvan
Posted

hmmm, are you anemia? that is a common symptom of anemia. and anemia is frequent with celiac.

Rachel--24 Collaborator
Rachel--24
Posted

I get cold after I've been glutened. I'm not sure if its the gluten reaction itself or if its because gluten accidents affect absorption of my thyroid medication. Feeling cold is a sign of low thyroid.

zip2play Apprentice
zip2play
Posted
  • Author

My thyroid is fine. We had that tested earlier this year.

I spoke with my family DR. She doesn't feel qualified to test/treat this. She has referred me to a Gastro Specialist. Only problem is his first appointment is November 28th! Hopefully he can test me immediately!

Thanks for your help!

As for anemia, I have no idea if I have that?!?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ElenaM
      - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of ...
    2. JulieRe
      - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

      Hi Everyone, I do appreciate your replies to my original post. Here is where I am now in this journey. I am currently seeing a Naturopath. One thing I did not post before is that I take Esomeprazole for GERD. My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow. She has put me on some digestive enzymes...
    3. Ceekay
      - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

      I'm sure it's chemically perfect. Most of them taste lousy!
    4. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

      Hi @JulieRe. I just found your post. It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida. I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment. In the meantime, I have been working with a functional...
    5. Scott Adams
      - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct r...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    catsrlife
    Newest Member
    catsrlife
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ElenaM
      I think I am gluten intolerant

      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.