Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue - Ugh!

DucksnPucks

By DucksnPucks
in Coping with Celiac Disease

Recommended Posts

DucksnPucks Rookie
DucksnPucks
Posted

Hey Gang-

 

Well, did it again. Ate something (though I'm still investigating exactly what IT is) that has gluten in it, and I'm paying for it. What I don't understand is that I've been incredibly careful. But I do know, after living with this for almost 12 years now, that being extremely careful is no guarantee. 

I've noticed from reading the boards here that many people have fatigue listed as one of the main symptoms, and most have it within hours of eating something with gluten. However, my fatigue doesn't hit until late, at least a couple days and sometimes a full week after being glutened. Is this normal? I don't usually get strong gastro symptoms, aside from bloating and C. Just wondering if anyone else gets fatigue about 48 hours after the initial glutening. 

Thanks everyone!

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


moosemalibu Collaborator
moosemalibu
Posted

Yes - I typically have delayed fatigue and other typical GI symptoms. It's variable from person to person.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I've only been gluten-free about 5 months now and have only been glutened once - so I have limited experience to share.  The one time I got glutened I got cold sweats and couldn't get warm - this started a few hours after having eaten the gluten cooties - so about 10pm.  Then by the next morning I was exceptionally exhausted.  Like the feeling you get after having the flu for 3 days.  I felt completely spent and hollow and all I wanted to do was sit and stare into space or sleep.  After about 5 days I felt pretty much normal again but noticed I was much more irritable than usual for quite awhile after that - like a few weeks maybe.

Nick-incollege Rookie
Nick-incollege
Posted

Brain fog hits me almost exactly 16 hours later. A week seems a little extreme to me.

Adalaide Mentor
Adalaide
Posted

It takes 2-3 days for the fatigue to hit me. Since I know when it's coming, when I have obviously been hit I try to get a few extra chores in order now in that spare day or two before I end up completely flat. Sometimes I'll throw a casserole or two in the freezer so I don't have to cook so much. Other than the GI symptoms that hit me in 30 minutes, and being gassy until the fatigue comes I'm fine until it hits.

icelandgirl Proficient
icelandgirl
Posted

I've only been glutened once and it was about 48 hours in that it all hit. Fatigue, aches, cramping and D. It's been 4 days now and am seeing improvement finally in the last 24 hours. It's like being really sick. Ugh.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. olivia11
      - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a...
    2. olivia11
      - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks f...
    3. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      suggest gluten free food

      Thanks for asking I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble...
    5. Jmartes71
      - Jmartes71 commented on Jefferson Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      4

      Common Neurologic Deficits in New Celiac Patients Linked With Autoimmunity to Transglutaminase 6

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,791
    • Most Online (within 30 mins)
      7,748
    blondebomber
    Newest Member
    blondebomber
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.