Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Sky High Ttg Iga But Normal Ema?

Triomam

Recommended Posts

Triomam Rookie
Triomam
Posted

Hi

I was at my doctors today as I've been really unwell over the weekend. My TTG IGA aria over 300-! D I had a biopsy last week and am waiting for the results. My GP mentioned today that my 'other test'...which I'm presuming is EMA, but I don't actually know, is normal for celiac disease. He anyone else had one sky high positive result and another normal and been diagnosed with celiac disease?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

You need to find out which test was normal.  It very well could have been normal Total Serum IgA which means you simply have enough IgA to make the tTG-IgA valid.

 

Or it could have been any one of the other tests in a complete panel:

 

tTG-IgG

EMA-IgA

DGP-IgA or IgG

AGA-IgA or IgG

 

Ask for written or electronic results for all medical tests.....always.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I agree that you should get a copy of your test results, but IMO... with a ttg Iga over 300 it almost doesn't matter.  You have Celiac.  Its good to get the biopsy to get an idea of the extent of the damage and they'll also check for other stuff - just to make sure Celiac is the only thing going on.

Triomam Rookie
Triomam
Posted
  • Author
  On 3/4/2014 at 12:48 PM, NoGlutenCooties said:

I agree that you should get a copy of your test results, but IMO... with a ttg Iga over 300 it almost doesn't matter.  You have Celiac.  Its good to get the biopsy to get an idea of the extent of the damage and they'll also check for other stuff - just to make sure Celiac is the only thing going on.

Thanks everyone.....I think I'm just frustrated and tearing my hair out. I've been clinging on/surviving life (wk, children etc) since being so unwell for last year. On paper my TTG IGA over 300 is way off the scale. My GP said so, the forums say so, the endoscopist said so...then at an appointment yesterday my GP (who is lovely...but clearly knows little about celiac disease-neither did I until ove been reading about it due to this!) kept saying.....but one of your results was negative for that...so it probably isn't..... Eh?!?! Last time she was certain, the endoscopist seemed to think def celiac disease whatever the biopsy shows (as could get a negative patchy sample)....... I think I'm just worried about what is the biopsy is negative .......with a TTG IGA of over 300....it doesn't seem like it can be anything else?!, ;-(

Triomam Rookie
Triomam
Posted
  • Author
  On 3/4/2014 at 9:22 PM, Triomam said:

Thanks everyone.....I think I'm just frustrated and tearing my hair out. I've been clinging on/surviving life (wk, children etc) since being so unwell for last year. On paper my TTG IGA over 300 is way off the scale. My GP said so, the forums say so, the endoscopist said so...then at an appointment yesterday my GP (who is lovely...but clearly knows little about celiac disease-neither did I until ove been reading about it due to this!) kept saying.....but one of your results was negative for that...so it probably isn't..... Eh?!?! Last time she was certain, the endoscopist seemed to think def celiac disease whatever the biopsy shows (as could get a negative patchy sample)....... I think I'm just worried about what is the biopsy is negative .......with a TTG IGA of over 300....it doesn't seem like it can be anything else?!, ;-(

I was wrong...my TTG IGA was above 300..... But it was a TTG IGA which was negative.....anyone have a positive IGA a but negative IGA.

Thanks loads. Still learning.....

Triomam Rookie
Triomam
Posted
  • Author

DOH...SORRY!

TTG IgAa above 300 but TTG igg which was negative.....

NoGlutenCooties Contributor
NoGlutenCooties
Posted

This may help a bit:  Open Original Shared Link

(sorry... ordinarily I'd summarize the important parts and post them directly but I'm in a rush at the moment)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,456
    • Most Online (within 30 mins)
      7,748
    Paulette B.
    Newest Member
    Paulette B.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Newly Diagnosed

      By Scott Adams · Posted

      It’s completely understandable to feel blindsided by a celiac disease diagnosis, especially when you’ve never experienced any noticeable symptoms. Many people assume that celiac disease always comes with obvious digestive distress, but in reality, some people—like you—are asymptomatic, or what’s sometimes called “silent celiac.” Even without symptoms, the disease can still cause internal damage to your small intestine and increase your risk for serious complications like osteoporosis, infertility, certain cancers, and neurological issues, including ataxia. That’s why treatment—a strict lifelong gluten-free diet—is recommended for all individuals diagnosed with celiac disease...
    • knitty kitty
      Frustrated

      By knitty kitty · Posted

      Welcome to the forum, @Jmartes71, Wow!  31 years!  That's great! You can get a DNA test to show genes specifically for Celiac.  Your genes don't change whether you eat gluten or not.   Have you been checked for nutritional deficiencies?  The gluten free diet can be low in essential nutrients.  You may have become a bit deficient after such a long time.  Deficiencies in certain vitamins and minerals can lead to many health problems. Start keeping a food journal.  Other food sensitivities could have developed.  Journaling can help connect symptoms with specific foods.  Vitamin D can help calm the immune system so you don't react to everything. When I was deficient, I had...
    • NCalvo822
      Newly Diagnosed

      By NCalvo822 · Posted

      Hi Everyone,   I’ve just been diagnosed with celiac disease, almost by accident. I went to find out if I have ataxia, as that is something my mother has. I believe my sister does too, though she hasn’t been diagnosed with ataxia. Anyway, lab tests showed I do not have ataxia, but I do have celiac disease. I have to admit, I was totally blindsided. I’ve never had any symptoms whatsoever. I am 58 years old and struggling to understand. My PCP did not put me on a strict gluten-free diet as I expected she would. Instead, she just said to continue as I have until now, since I have no symptoms. This doesn’t sound right to me. If you’re an asymptomatic celiac disease patient like me, I’d love to hear...
    • Ginger38
      This Roller Coaster Ride Needs to Stop

      By Ginger38 · Posted

      Thank you ! Good to know I am not alone. I am currently on metformin and rybelsus for my diabetes. The last week or so my sugar has been so uncontrolled, more so than before. I am very frustrated and discouraged by all this. I have had days of 317 to a low of 64. I feel terrible. I am getting back on the gluten free wagon, just taking some time, and not seeing results and relief as fast as I had hoped. My stomach is just a mess, sometimes worse than others
    • Ginger38
      Confused About Results

      By Ginger38 · Posted

      Thanks. I appreciate it 
×
×
  • Create New...