Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Steroid Shot Should I Expect The Rash To Come Back

Juniper2080

By Juniper2080
in Dermatitis Herpetiformis

Recommended Posts

Juniper2080 Newbie
Juniper2080
Posted

So about a month and a half ago I got this awful rash that itched like crazy after some research and lots of reading web pages, blogs, forums I suspected that I have DH. I have had digestive problems for almost 4 years and could never figure out what it was that was making me run to the bathroom 20-30 min after eating!! So I went to the doctor on March 24th and she sent me for blood work (which came back negative for celiac) and then she gave me a steroid shot (as the creams did nothing for the itch) and with in about a week and a half the itch was gone and the rash was slowly fading. I went gluten free on April 1st and saw an immediate relief in my digestion problems (I can eat things now without the gluten bread and I have NO problems). How ever it has been a month since my shot and I was wondering if anyone knew how long the steroids would be in my system or how long until I have a backlash from the steroid? I did have a gluten meal the other day (ordered a gluten-free meal from Bob Evans and they totally screwed up...I didn't notice until I was home) and within 20 mins of eating it I was in the bathroom!!! So I am convinced I will be staying gluten-free for the rest of my life but anytime I have the slightest itch or red spot I freak out thinking that the rash is coming back!!! I hate waking up each morning wondering if today is the day the rash comes back!!!! Any help would be greatly appreciated!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

From my own experience of taking oral steroids, I would get the backlash anywhere from 3 days to a week after quitting the steroid. I don't know the amount of time for others as I don't remember if they stated a time frame for a backlash. And I have no idea how long a steroid shot would remain in your system. But I can offer this:

We moved about 400 miles & when we did our dog began having allergies to ????? pollen?, weeds, grasses????? in our new locale. Terrible allergy! We had to do something. The vet gave her a steroid shot --- that lasted 1 month before she was back to scratching & gnawing her legs nekked. So the vet gave her another shot of the same steroid ~~~ that lasted 3 weeks. Now he has given her a steroid shot of a different steroid ~~~ we don't know how long this one will last. It's not that much different for dogs as humans regarding how long any particular steroid shot is going to stay with them. The vet says we have to try different ones. This last shot may be the ticket that gets her through the entire season ~~~ we just won't know until we know. Different individuals react differently to different steroids just as we do all medications & that applies to humans & dogs alike. 

I would advise you to just relax & not stress on it. It won't do you any good to fret & worry & agonize over it. You are gluten-free now & say you're going to stay that way. Just try to move forward & not obsess on it. It's also possible you do not have dh. There are many rashes/skin issues associated with celiac disease. 

Juniper2080 Newbie
Juniper2080
Posted
  • Author

Thanks for you quick response!!  You just reiterated what I keep telling myself....but you know how it is...sometimes you just have to have someone else tell you :)

squirmingitch Veteran
squirmingitch
Posted

No problem! I'm happy to validate. :D I know the feeling of needing someone else to say or think the same thing. Who doesn't?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,601
    • Most Online (within 30 mins)
      7,748
    rita jean
    Newest Member
    rita jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.