Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Rash But Negative Blood Tests

Kat123

Recommended Posts

Kat123 Newbie
Kat123
Posted

I'm looking for some psychological help!!! I have been going through the whole celiac diagnosis process and it is so frustrating. I have had all the classic symptoms for months/ years: "D" everyday, vitamin d, K and B12 deficiencies diagnosed through blood tests, joint pain and migraines and fatigue. I was diagnosed with hashimoto's more than 20 years ago, and B12 deficiency 10 years ago, my brother also has gluten intolerance (possibly celiac although they don't seem to distinguish in the same way in England where he lives). 

 

I went to see a naturopath doctor seeking help. She suggested that I may have a gluten problem, stupidly it had not occurred to me before. So I went completely gluten free for 12 days and also conferred with my regular doctor who agreed with the naturopath and ordered the blood tests. So I had probably only been totally gluten free for a few days (maybe 5 days) when the blood was drawn. When the blood tests came back negative the naturopath pointed out that they had not run the correct panel and so after being gluten free for 12 days I started eating gluten again to try and get the correct panel run.

 

Only one day after resuming gluten I broke out in a burning, stinging itchy rash. It looks exactly like the Dh rash pictures posted on this website. I realized that I had broken out with this rash before (a number of times over the last 10 years) but only in small patches (always starting in the same place) and that I had consulted the doctor about it before because the sores hung around for months. I had just been told to rub various creams on it but none of them helped. I stopped consulting the doctor and typically the rash would run its course over a month or so. However, this outbreak was much more widespread over my body, on my chest, shoulders, arms and thighs. The naturopath saw it and said she thought it was Dh. After resuming eating gluten for a week (only having been off it for 12 days) I went for the correct blood tests, i.e. total IGa serum, Ema and all the other tests recommended on this website. They all came back negative too. Now I am struggling with whether this is celiac or whether I am just a hypochondriac!!! And it is really depressing me, please advise! I do not know of any celiac knowledgable dermatologists in my area and I'm sure the skin biopsy would probably be negative and just demoralize me more!

 

Sorry for the length of this post!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

Can you get a DH biopsy done? Many people with DH test negative on blood work.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.