Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice

beth01

Recommended Posts

beth01 Enthusiast
beth01
Posted

I was glutened about 10 days ago.  The only thing that has stuck around for symptoms is the brain fog, it won't lift. Two days ago I tried eating raw carrots for the first time since my diagnosis, I had about a handful of the mini's.  I felt fine for about 5 hours and then I felt awful, stomach pain, the big D, nausea and  a headache - all from carrots. I didn't have any other new foods, and the foods that I had that day I have had before and not had a problem with them. My stomach was so sore yesterday I couldn't eat anything.

 

Now today I have the worst headache, my body hurts from head to toe - I can hardly walk. I don't even know how to explain the pain, it's more of a bone ache than anything. My only joints that hurt are my hips and that is new too, any joint pain I had before was more my upper body.  I have never felt this way before, it's totally new. I also had the vaginal itching come back full force, vaginal bleeding TMI sorry. I can't take anything more than Tylenol, allergic to everything but fentanyl.

 

I don't have much experience with glutenings it's only been two months since my diagnosis but the few that I have had I am sick within hours.  I know people have said that their symptoms of a glutening can change and get worse after you have been off gluten for a while.

 

I have a gluten free house, the only thing I haven't done is change my pots/pans/dishes. They were all relatively new, we just washed them well.  Anything scratched is gone.

 

I am just at a loss, I didn't eat anything yesterday, only had water ( out of a water bottle so I know the damn cats didn't lick it), and my pills( all of them called 800 numbers and asked the company if they were safe).

 

Has this happened to anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I was glutened about 10 days ago.  The only thing that has stuck around for symptoms is the brain fog, it won't lift. Two days ago I tried eating raw carrots for the first time since my diagnosis, I had about a handful of the mini's.  I felt fine for about 5 hours and then I felt awful, stomach pain, the big D, nausea and  a headache - all from carrots. I didn't have any other new foods, and the foods that I had that day I have had before and not had a problem with them. My stomach was so sore yesterday I couldn't eat anything.

 

Now today I have the worst headache, my body hurts from head to toe - I can hardly walk. I don't even know how to explain the pain, it's more of a bone ache than anything. My only joints that hurt are my hips and that is new too, any joint pain I had before was more my upper body.  I have never felt this way before, it's totally new. I also had the vaginal itching come back full force, vaginal bleeding TMI sorry. I can't take anything more than Tylenol, allergic to everything but fentanyl.

 

I don't have much experience with glutenings it's only been two months since my diagnosis but the few that I have had I am sick within hours.  I know people have said that their symptoms of a glutening can change and get worse after you have been off gluten for a while.

 

I have a gluten free house, the only thing I haven't done is change my pots/pans/dishes. They were all relatively new, we just washed them well.  Anything scratched is gone.

 

I am just at a loss, I didn't eat anything yesterday, only had water ( out of a water bottle so I know the damn cats didn't lick it), and my pills( all of them called 800 numbers and asked the company if they were safe).

 

Has this happened to anyone else?

Did you say on another thread that you had some other illnesses? Maybe this is from them?

beth01 Enthusiast
beth01
Posted
  • Author

I was thinking the same thing, but I have never felt this way before.  If I didn't have two kids here right now and could drive, I would be on my way to the hospital. I just don't want to go and have them tell me I'm and idiot and somehow glutened myself.

kareng Grand Master
kareng
Posted

I was thinking the same thing, but I have never felt this way before.  If I didn't have two kids here right now and could drive, I would be on my way to the hospital. I just don't want to go and have them tell me I'm and idiot and somehow glutened myself.

This doesn't sound like a glutening from 10 days ago. Maybe you have caught something? If you feel like you should go to the hospital, you can call 911.

beth01 Enthusiast
beth01
Posted
  • Author

Today I don't have any nausea, no vomiting, no D, just the unbelievable pain. I am actually hungry. I didn't think it was a glutening either.  I am trying not to freak my kids out too much but they know momma doesn't feel right.  I had to go take a bath so I could cry. 

 

Thanks for the reply's Karen.

notme Experienced
notme
Posted

hormones will mess you up, every time.........  or, i can't eat those pre-peeled carrots (even cooked) maybe they rinse them in something :( i dunno, just my experience.  sometimes it's not a 'glutening' vs 'something i can't eat right now' - it takes a minute to know the difference.  i know the first year i was gluten-free i was always second guessing where i got glutened right around my period time (headache, general 'goo' guts, fatigue) but give it time and you'll know what's gluten and what's mother nature.  i hope you feel better :)

beth01 Enthusiast
beth01
Posted
  • Author

I somehow managed to make it through the night.  Not sure how, the pain was everywhere and traveling but it seems more like nerve pain that anything. And some of my bones ache.  One minute my back would hurt, then my foot, then my arm, my neck, my chest, my legs, then the fun of everywhere all at once.  It kind of came in cycles.  I called the clinic this morning to see if I could be seen by a staff doctor and not a resident but they didn't have any openings but I actually got in with my doctor tomorrow afternoon.  I just have to make it that long.  The nurse did stress to me that if I am in that much pain to go to the ER.  I told her I was concerned that when I go they treat me like a drug seeker and she told me if that happened to make a complaint.  She said she was going to put a note in my chart that I am not a drug seeker but have multiple health issues that cause me pain.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748
    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.