Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh Joy! 2 Part Vent: 1) Kitchen Helpers; 2) Bread That Sucks


MsQuel

Recommended Posts

MsQuel Newbie

VENT 1:

 

OMG kitchen "helpers" please DO NOT help me cut my bread into slices on my cutting boards.  When I have a French loaf out as a courtesy, I usually cut it on top of the paper to minimize cross-contamination.  Then I throw the paper away and it never touches anything but knife and plates which I deem clean enough (Hail Mary) when I sanitize them in the Heavy cycle (again, this is a hope and I pray it's true because I'm not getting separate silver and plates.

 

My friend was trying to help me and being all proactive in my kitchen (this kitchen is WHY I do not go out, it's just as I want it to be except maybe I'd like granite).  He was finishing the cutting on the other stub of the loaf and moved it to MY wooden cutting board and then after the fact, asks "Is this ok"  (The same fellow who dunked his pita in my tzatziki sauce, when I made a special effort to have a SPOON out to move a dollop to each person's plate and TELLING HIM "Now I cannot use the sauce because you dunked and I have high sensitivity to crosscontamination").  WHY WHY WHY.  Kitchen helpers, please let the gluten-free person take care of his  gluten-free diet in their home.  KTHANKS.  I will tell him again but there's no account he'll remember and because he springs to his feet to help me when I don't ask or want help.

 

VENT 2:

 

One thing that I will miss the most is just making myself a simple sandwich.  I'm the mom and have 2 kids and a spouse.  I haven't done away with regular bread like I have every other thing in the house (such as no more flours or pastas in my cupboard that contain gluten).

 

So I just made a delicious looking sandwich for hubby for his lunch and a lesser version that pales in comparison for me on this horrible rice bread!  Eew... you know the brand, it has a maybe tan and orange label.  Even the "good" gluten-free bread SUCKS!

 

I'm looking at his bread knowing the exact taste and texture of that bread and that's REALLY what I'm craving.  I'm very sad that I can't have it for myself  (not really tempted at all to try, just to clarify).  I JUST WISH gluten-free BREAD DIDN'T SUCK!  My sandwich experience sucks too.  I can't do lettuce leave wraps for everything either, that's OK for one of the FEW places I trust (Jimmy John's and a certain owner-run sandwich shop 20 mins. away from me in a place with signs all over about how we can make food to your order for allergies and gluten-free).  The mere act of swallowing this bread requires a medal.  I feel like I just ate paste in baked "square" form and just hope it gets digested before it comes back up.

 

I should have just used these Back to Nature gluten-free sea salt and black pepper crackers which taste good.  Lately I don't even bother to replace the bun and just eat a hamburger medium rare to medium with grill marks and pretend I'm eating a delux sirloin steak.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

try udi's or rudi's bread products.  or scharr.  use the crappy bread for breadcrumbs.  

ravenwoodglass Mentor

I know that bread of which you speak. It is soooo very awful IMHO. Someone must like it though or they would have stopped making it. 

Do try UDI's it is much more like gluten bread texture wise and tastes okay. Grainless Baker makes french bread loaves that I like to use for burgers or sometimes I just make a meal of a loaf and some good cheese. 

 

I hope you can educate your friend. You might even want to guide him here and have him read the Celiac 101 thread so he better understands all you need do to be safe. 

Hope things get easier for you soon.

CajunChic Explorer

I like Bob's Red Mill "wonderful bread mix". I bought a bread machine and find its better than the frozen stuff. It tastes close to the gluten goodness we all knew. I add flax seeds for extra fiber. Good luck on your quest!

BlessedMommy Rising Star

I really like Udi's hamburger and hot dog buns. My favorite bread for sandwiches and toast is Canyon Bakehouse. I also have baked my own in the past and plan to do some more baking.

 

Do keep looking around, because this is the rest of your life, so you may as well find some bread that you like, no use suffering with the horrible stuff for the next 50 years. I remember when I first started eliminating wheat (almost 6 years ago, so 2008), the bread options that were around then were horrible! We didn't have Udi's in our area and Canyon Bakehouse probably didn't even exist back then. 

 

I remember the extremely hard cardboardy unpalatable gluten-free bread. Ew! I'm glad that they have better options today. 

 

My house is 99% gluten free. (except for the isolated few gluten items that come in for my hubby and that are quarantined carefully, cooked on separate implements and removed from the house in a timely and controlled fashion) My husband and my child that don't have any gluten issues at all, eat the Canyon Bakehouse (or whatever we have at the time) right along with us and they think that it's fine. I got tired of cleaning up bread crumbs and worrying about CC all the time, so this is one way that I can relax a little in my own house.

 

I hope that you figure out a solution that makes you feel comfortable.

vet103 Newbie

I use Schar half-baked breads or Udi's frozen when I can't find Schar, but I grew up in an E.European home and would sell my left arm for good heavy brick of bread.  BRM is the best dry mix I've found so far.  Even though I have only personally been gluten-free since April -- I have a sib and nephew who were Dx'd GSE+ several years ago, so gluten-free is nothing new to me; only 100% gluten-free is new to me.

 

If you can afford a splurge and have freezer space... When I had my EUS, I had to stay in hospital "lodging" overnight because I got propofol = no driving for 24hrs.  The hospital gluten-free bread was this heavy chewy slice of heaven.  I found out it was GFC Bakery (Arizona) Sandwich Bread.

 

... so my birthday present to myself was a sampling of Sandwich bread, Mock-Rye, Seeded Multigrain, and a banana bread. The Fedex cost completely sucked even though local "arrival day" weather predictions between 46-62° (small blessings!) let me choose 3-day Air instead of 2-day. That indulgence will likely only be October-May for me; dry-goods-only orders during the summer.  Once the heat kicks in here, 3 day shipping will be too long even with dry ice and styrofoam, and 2 day shipping $$ is outside of my rationale.

 

All four are slices of heaven in their own ways.  If friends want to know what I want for my birthday -- gift certificates!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,473
    • Most Online (within 30 mins)
      7,748

    Kelly Hannon
    Newest Member
    Kelly Hannon
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.