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Soy Intolerance Resources?

Kias4

By Kias4
in Related Issues & Disorders

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Kias4 Apprentice
Kias4
Posted

I am starting to believe that I have soy intolerance in addition to my celiac disease.  Other celiacs in these forums have mentioned that celiacs often develop soy intolerance, but I was wondering if anyone had any actual resources verifying this relationship.  I would also be interested in any resources for soy intolerance in adults (in general, regardless of celiac status).  Internet searches are not providing me with much information. The articles I've found all seem to focus on infants.

 

Thank you!

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IrishHeart Veteran
IrishHeart
Posted

I have never found any Pub  Med articles that definitively link a soy intolerance to celiac disease. I have looked.

 

Most of the time, anecodotal evidence is the only source I have found. I do not tolerate soy for some reason (and a few other foods)

but I have not seen any celiac research that explains why. 

 

Dairy is often a secondary intolerance but it is often temporary and it can be resumed after a few months once lactase is produced in the villi once more.

 

Simply put, people may have additional food intolerances but there is no valid, peer-reviewed research that I know of that explains why soy--or any of those foods --are a problem. Some celiac doctors suggest a "leaky gut" is the culprit, but they also say that food intolerances may resolve in time.

 

I did read a good article about food intolerances and celiac written by Sheila Crowe, MD in the book Real Life with Celiac Disease by Melinda Dennis and Daniel Leffler.

Pegleg84 Collaborator
Pegleg84
Posted

I'm intolerant to soy, and while there is no research that shows a direct link from Celiac to other intolerances, it does seem to be quite common for people with Celiac to have other intolerances. I have read that it is possible (though I don't think proven) that for people who are intolerant soy might also cause villous atrophy, but I think the jury's still out on that.

 

Anyway, i've also been looking for good soy-free resources. There are some websites and stuff out there, but it is hard to find gluten-free and soy-free resources (because really, if there's a recipe for something without soy but with gluten, it's kind of useless). Avoiding soy is a lot more difficult than avoiding gluten a lot of the time. It's in the most random places. Tea! What the F is soy doing in tea! I avoid all forms of soy including soy lectin and oil, though I don't worry about "may contain soy" so much. It really limits your gluten-free options since you're like "yay! gluten-free cookies! .... damn, soy lectin in the chocolate chips...."

 

Soy sucks. SUUUUCKS!

IrishHeart Veteran
IrishHeart
Posted

If it helps, after 3.5 post-DX, I can now do some gluten-free soy sauce in dishes and soy lecithin in things like choc chips.

Maybe your intolerance will resolve, too! I am not an edamame or tofu fan anyway, so it is no big loss for me if I can't have big portions

of it. 

Pegleg84 Collaborator
Pegleg84
Posted

I can eat teeny amounts of cheese (like fingernail sized amounts that I savour as long as I can) and some butter now without problems, but I still avoid soy like the plague. You give me hope, Irish!

IrishHeart Veteran
IrishHeart
Posted

I can eat teeny amounts of cheese (like fingernail sized amounts that I savour as long as I can) and some butter now without problems, but I still avoid soy like the plague. You give me hope, Irish!

 

Here is what I know about the healing process: patience, time and a plethora of unexpected "get backs"! :) 

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