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Celiac?not Sure

christa

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christa Contributor
christa
Posted

Hi ,

This is my first time posting here. I had blood tests done and a biopsy that came back negative for celiac disease. I have horrible reactions when I eat it though and I had been following a low gluten diet for about 8 months prior to testing because I figured out it bothers me. Problem is I also can't eat dairy or fruits and some vegetables. Even rice bread bothers me and I've tried a number of different kinds. I don't know if it is because I have continued to eat gluten to some degree that I m reacting to all of these other things as well or is it possible to be intolerant to all of these things. I end up eating chicken and brussel sprouts for breakfast. I have been dealing with this for 3 1/2years. I finally asked my mom to go nd get tested for celiac disease as she has had some stomach trouble all her life. So she had a blood test done today. I also have an uncle that I suspect has celiac disease. He is a farmer and said he feels the worst at harvest time. I figure it is because he is probably inhaling more of it then usual. I guess what my question is, is that I have decided to follow a strict gluten free diet but how long will it take before I quit reacting to some of these other things and is that normal to be reacting to them when I am still consuming gluten. I probably ontly eat it twice a week. like a peice of bread here and there. Is tht enoght to set me off? I just don't know what to do anymore!! :(

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Rachel--24 Collaborator
Rachel--24
Posted

I've been gluten-free 2 1/2 months now....which isnt really very long but I still react to other foods. I think it takes awhile to heal completely. I'm also taking enzymes and probiotics to help.

And yes...eating gluten *at all* is enough to cause problems. Being on a low-gluten diet isn't going to change symptoms...its still causing damage.

judy05 Apprentice
judy05
Posted
I've been gluten-free 2 1/2 months now....which isnt really very long but I still react to other foods. I think it takes awhile to heal completely. I'm also taking enzymes and probiotics to help.

And yes...eating gluten *at all* is enough to cause problems. Being on a low-gluten diet isn't going to change symptoms...its still causing damage.

<{POST_SNAPBACK}>

I just want to put my two cents in here. Eating brussels sprouts in the morning or any other time isn't good for someone with digestive issues. You should be eating very simple, bland food. Try a banana, applesauce, mashed potatoes, chicken or pork or fish. Eat very simple veggies like green beans. Brussel sprouts, broccoli and cauliflower are very harsh veggies and cause a lot of gas. Go completely gluten-free. You won't feel better until you do, and in the time being you might give up dairy for a while, a lot of us react to this. There are a lot of good gluten-free foods for breakfast, like pancakes or muffins. Try to keep a journal of what you are eating every day, that way you can find what's making you sick. Come here often and see what others are eating. I think it will help!

You might not need the supplements if you are eating the right foods.

canadia Newbie
canadia
Posted

Before I went gluten-free I had a lot of food problems. But now that I'm on a 100% gluten-free diet I can suddenly handle things like red meat, pasta sauce, and milk, which before made me extremely sick.

darkangel Rookie
darkangel
Posted
Eating brussels sprouts in the morning or any other time isn't good for someone with digestive issues. ... Brussel sprouts, broccoli and cauliflower are very harsh veggies and cause a lot of gas.

<{POST_SNAPBACK}>

I agree. I've found green beans and winter squash to be some of the gentlest veggies for digestive problems.

You don't really say what your symptoms are, but you may want to take a look at the Specific Carbohydrate Diet. It goes beyond being gluten-free... it eliminates all grains. It is a strict grain-free, lactose-free, and sucrose-free dietary regimen.

kabowman Explorer
kabowman
Posted

After I went completely gluten-free, I was able to start identifying other foods that bothered me too. The bread could be soy or corn or yeast especially if you are having problems with fruit. Which veggies? My sister cannot have nightshades (no potatoes, peppers, tomatoes, etc.)...some people have problems with rice.

I had to go to plain meat, in a clean skillet with uncontaminiated utensils, and plain veggies until I was showing no reactions--no condiments, no breading, no butter, ect. Make sure the counters are spotless - no crumbs. I then started to add stuff in, slowly, one thing at a time and if I didn't react, I added it in to my diet. If I had reaction then I would try to figure out what ingredient in the new item could be causing me problems by testing with other items and then the same later.

Vinegar products were difficult to figure out and then later, after I knew no vinegar, I discovered it was the yeast in the vinegar process that bothered me.

It is only difficult the first week or two - after that, you start building up a lot that you can eat. I have no problems getting enough variety after a year on the diet.

kabowman Explorer
kabowman
Posted

Oh, I forgot - I never had the blood test for celiac disease and was gluten-free for several months before going in for a biopsy which showed no damage. Therefore I do not conclusively have celiac disease.

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christa Contributor
christa
Posted
  • Author
Oh, I forgot - I never had the blood test for celiac disease and was gluten-free for several months before going in for a biopsy which showed no damage. Therefore I do not conclusively have celiac disease.

<{POST_SNAPBACK}>

your intolerances sound alot like mine. sucks to not be able to eat any condiments

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