Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cushing Syndrome

twe0708

By twe0708
in Related Issues & Disorders

Recommended Posts

twe0708 Community Regular
twe0708
Posted

Does anyone have this and can this be treated?  I noticed a small hump below the back of my neck which I know is a symptom of Cushing Syndrome but was wondering if I go to the doctor, is there something they can do to keep me from getting worse?  I have also started putting on more weight on the upper body.  :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

See a doctor?  Not sure how you can diagnose this yourself.

 

 

Open Original Shared Link

twe0708 Community Regular
twe0708
Posted
  • Author

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

kareng Grand Master
kareng
Posted

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

 

 

I see you posted about this 2 years ago.  What did the doctor say at that time?  What treatment were you put on?  It looks like a doctor can help you.  It must have gotten worse in 2 years?

twe0708 Community Regular
twe0708
Posted
  • Author

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

I'm just trying to figure out if I need to return to the doctor to see if other problems are starting due to Cushings.

kareng Grand Master
kareng
Posted

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

 

Sure.  Sorry.  I thought you might have a serious problem but it sounds like  you are fine.  Great!   :)

HavaneseMom Explorer
HavaneseMom
Posted

Does it look like the hump in the picture in this link?

Open Original Shared Link

If so, it can be caused by poor posture, weak muscles or scoliosis, all of which can be worsened with the upper body weight gain you mentioned.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraTX Rising Star
LauraTX
Posted

Are you on long term oral corticosteroids, such as prednisone?

twe0708 Community Regular
twe0708
Posted
  • Author

No corticosteroids now or in the past.  Attached is a link with someone else and their neck.  My is not as bad as this but if you google more images you will see how bad it could get.

 

Open Original Shared Link

 

Scroll down to bottom of page where they show the lady before and after.  Mine isn't as bad but there is something there.  I can't believe how bad some of the pictures I have seen.  Very scary!

kareng Grand Master
kareng
Posted

Here is the link to your same topic from 2 years ago. Maybe there is some info there for people reading along....

https://www.celiac.com/forums/topic/96635-cushings-disease-or-buffalo-hump/#entry823920

LauraTX Rising Star
LauraTX
Posted

Then you just really need to see a doctor.  You cannot safely diagnose yourself with Cushings syndrome, and because it can be caused by serious illness, you need to get the root cause checked out.  As always, if you are not happy with what a doctor does, you can always change doctors.  The blog you linked to, while it could be helpful to patients properly diagnosed with Cushings, is very biased and written by a non-expert.  I would look elsewhere for reputable information.

 

If yours isn't as bad as the last pictures on that blog post, I highly suspect it could just be aging and body changes.  I, myself, have always had what I call the "Old white lady" shaped body, basically since maturity.  My waist size and my leg size do not match up -my waist is a size 16 and my legs are a size 12.  Now that I have been on prednisone for over a year for my lupus (finally now tapering doses down to go off), those disproportions have magnified.  But overall, I accept that I am just not going to look like the thin necked models out there in magazines.

 

If it would make you feel better to get thoroughly checked out, you can ask for specific tests to be run, and if your doctor won't do them, find someone who will.  However, whatever the outcome, you need to learn to accept yourself as-is or you are going to drive yourself crazy with worry.  Don't compare yourself to others in the looks department, that is not where you will find true happiness.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.