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Not Diagnosed Yet

strum

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strum Rookie
strum
Posted

So, here's my story. For about the last year, I have been experiencing increasing GI issues. Bloating, gas and diarrhea mainly. To the point that it is beginning to interfere with work, and I do not want to go out or travel. I have had gastric bypass so I had been blaming that. I noticed when I cut back on carbs the symptoms improved. For the last 2-3 months I have been eating a low carb diet. I finally had an endoscopy and colonoscopy last week and it came back as "may represent an early manifestation of Celiac's disease". Other symptoms I have included migraines, really low ferritin levels for at least six months (been either 4 or 6), been losing teeth to cracking. I also have two other autoimmune diseases - hashimotos thyroiditis and Addison's disease.

Sorry that was so long. Any way, the doctor reading the test results recommended further blood testing. So I am trying to increase my gluten intake. Does that sounds reasonable? I just started yesterday and I am so sick already, can't hardly get out of the bathroom and my belly is aching like crazy. Just wanted to see what you all thought. And to vent a bit. Thanks.

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notme Experienced
notme
Posted

sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?  

strum Rookie
strum
Posted
  • Author

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

beebs Enthusiast
beebs
Posted

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

strum Rookie
strum
Posted
  • Author

The report from the pathologist went on to say "may represent an early manifestation of celiac disease" and recommends further serological testing.

NatureChick Rookie
NatureChick
Posted

The two figures I've seen to ensure test accuracy (two different sources) are the equivalent of two pieces of bread a day for 6-8 weeks, or the equivalent of one piece of bread a day for 12 weeks.

In either case, it seems as if you've already realized that you have a problem with gluten. Congratulations on discovering a possible culprit for many of your woes. And best of luck getting through the next several weeks.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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