Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling With Team


volleymom

Recommended Posts

volleymom Newbie

 Hi All! I'm a newbie here and hope you can help me. My extremely gluten sensitive teen daughter is a competitive volleyball player and has been chosen to play on a team in the national high performance championships 1500 miles away.She will be gone for a week and will be eating many meals served family style, etc.  I'm not too concerned about her negotiating eating out when she gets to choose her own individual meal, as she is good at choosing gluten-free items and courteously advocating for her needs with waitstaff. I'm more concerned with the other meals she'll be eating. To keep costs down the team buys ingredients and makes bag lunches and snacks for the girls or gets pizza, subs, etc. Many of the options will not be gluten free and obviously aren't going to work for her. I will of course be asking that they include gluten free options for her, but am concerned that they might not always be available (someone eats her gluten-free cold cuts by mistake, things get cc'ed, etc.) What can I pack/send with her that 1) will stay fresh without refrigeration (for travel), 2) ensure enough nutrition for a demanding play/practice schedule 3) not take up much space (only allowed 2 carry-ons) and 4) be appealing to a teen-aged girl? Thanks for any help/suggestions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KCG91 Enthusiast

Well done her! I think maybe she/you should treat the family-style meals (do you mean cooked by coaches/host families or something?) as you would do eating out - making sure those preparing it are fully aware of her needs. Maybe there is something from this site you could send in advance to help them prepare as she'll need to be eating properly to play well :) Is she formally diagnosed with coeliac? Might be worth mentioning if she is, just to add weight to the importance of safe food for her. 

 

I travel a fair bit for running events and my go-to is a jar of peanut butter, a jar of jam (jelly!) and rice cakes/gluten-free crackers. I also take rice/quinoa/gluten-free pasta and a sauce with me if I'll be able to cook. If she can have oats, gluten free oats can make decent porridge if you pour boiling water over them, stir and leave for two minutes (put sugar on it or something, or the peanut butter/jam mixed in). Oh and popcorn! I take tubs of that with me (ideas coming straight from my brain to the page here haha). Can she arrange to buy fresh fruit and veg daily there to supplement all these storecupboard things? Eggs? Good luck!

  • 1 month later...
Chrisz1000 Newbie

Great news and congratulations.

On google search for blueberry bliss energy bar recipe. There's a greatl recipe there for making batches of homemade energy bars. It's quite flexible so if you don't like blueberries swap for other dried fruits or use mixed berries, swap almonds for walnuts etc.

I use these as snacks between meals. They are hugely calorific and come in handy if there aren't any gluten free options available for a few hours.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.