Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge - Ugh :(

CanadianK

Recommended Posts

CanadianK Apprentice
CanadianK
Posted

I'm on day 3 of the gluten challenge, after feeling A.Mazing on the SCD. I did the SCD for 5 weeks and while my loose BMs didn't clear up they went down to one a day and I had energy that went on forever and patience for my children (and husband) and just generally felt light and good! 

 

Now my back pain is back, my kidney's ache (referral from intestines?), I'm weepy, no patience and tired. So so tired. The amount of times I have diarrhea is slowly creeping back up and I just feel nauseous. :( The brain fog is creeping in as well...

 

I'm very surprised how weepy I feel. Just a general low level sadness, and inability to cope. *sigh* 

 

Doing the gluten challenge is by choice and it's for my own knowledge to have a definitive answer (being called a hypochondriac my whole childhood leads to me needing to have concrete answers) so I know I'm bringing this on myself, but my goodness, this doesn't feel manageable today. 

 

Thanks for "listening"

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

I'm sorry that you're feeling bad. Hopefully you will get some definite answers.

 

Remember not to overdo the gluten, one sandwich a day is plenty. 

nvsmom Community Regular
nvsmom
Posted

Yes, all you need is 1-2 slices of bread per day, or equivalent.  Try for 2 slices if you are doing a shorter challenge (8 weeks) rather than the longer one (12 weeks).

 

Since you've reacted so strongly, you definitely know it is either celiac disease or non-celiac gluten sensitivity (NCGS).  If tests are positive, it is celiac disease, and if they are negative, it is most likely NCGS.  Both are nasty and require a gluten-free diet for treatment, but celiac disease is better known even though it is more rare (<1% vs ~6%).

 

Hang in there. If it gets to be too much, contact your doctor and test early - it may not be accurate, but it could be. Just be careful, not everyone can make it through the gluten challenge.

Jmg Mentor
Jmg
Posted

I'm on day 10 of my challenge and this:

 

I'm very surprised how weepy I feel. Just a general low level sadness, and inability to cope. *sigh* 

 

 

is how I feel too. I try to look at it in a positive way, at least as it comes after the change in diet there's an explanation for it and that makes it a lot easier for me to deal with it. In the past I'd be thinking about anti depressants or counselling, now I know it's physical manifestation of my bodies reaction to gluten, it doesn't make me less sad or anxious, but it does help me to rationalise and deal with it :)

 

Best of luck!  ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,064
    • Most Online (within 30 mins)
      7,748
    Lexxi Hartless
    Newest Member
    Lexxi Hartless
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...