Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pepcid And Thiamcinolone


Doorknocker

Recommended Posts

squirmingitch Veteran

Yes! Pet food can gluten you!!!! Pets lick themselves. drool & what the gluten goes on can get transferred to you. You said grinding..... do you use the same food processor? There could be a source of cc. There are grain free/gluten free pet foods. Just Google gluten-free dog food, cat food. Also, in the grinding process, if there's gluten in it, the powder can be breathed by you. What goes in your nose & down your throat, goes in your gut. Do you kiss your dog? I know I kiss mine all the time. She eats gluten free -- Fromm Grain free, Annamaet also makes grain free (gluten-free), lots of choices out there for gluten-free dog food. 

 

Believe me, I do know how overwhelming it is in the beginning. There is a hugely steep learning curve, sort of like climbing Mt. Everest. It takes a while to get all the rules down pat. 

Just Google whatever it is you're looking for & add gluten free & you will come up with lots of info. there is a thread on here for gluten free make up & shampoo & so forth. Some will say you don't need gluten-free make up or lotions but when you have dh, you really DO have to worry about it. DH is unbelievably sensitive to the tiniest amount of gluten. The med publications say the gluten molecule is too small to pass through skin. All fine & well but we have open sores! It doesn't have to pass through the skin b/c we scratched the skin off or the skin was compromised by a blister that ruptured. You see?

 

Here is a link to the forum where you can find lots of info. on not only food products but meds & topical products that are gluten-free.

https://www.celiac.com/forums/forum/32-gluten-free-foods-products-shopping-medications/?prune_day=100&sort_by=Z-A&sort_key=last_post&topicfilter=all

Here is one on stuff like shampoo

https://www.celiac.com/forums/topic/108589-gluten-free-shampoo-conditioner-body-wash/

 

Personally, I just use Suave shampoo & conditioner -- cheap, does a good job, smells yummy & is gluten-free. Vaseline Intensive Rescue Repairing lotion is gluten-free. Dove deodorant is gluten-free. So is Mitchum. I think a lot of the Garnier (sp?) products are gluten-free. 

 

Call companies too when you're not sure. That's food, pharmaceutical companies (for prescriptions or OTC), cosmetics. & topicals as well as pet food companies. I call all the time. BTW, McCormick has gluten-free turkey & beef gravy packets now as well as chili mix & taco seasoning. I called them last week. They have an excellent policy for ensuring gluten-free is gluten-free. They will always reveal gluten ingredients on the ingredients list. With the new labeling law, things are going to get much easier for us!

 

Here's the Newbie 101 thread:

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

You know oatmeal is cc'd don't you? You have to have oats that are grown in certified fields & harvested & processed on clean equipment. Bob's Red Mill (BRM) has certified gluten-free oats. And BTW, it's a good idea not to eat even certified gluten-free oats for a year. The protein is so similar to the wheat protein that the body might react. So just skip the oats for a year.

 

As to travel.... get yourself together a travel kit --- 1 or 2 pots & pans, flexible cutting board, a few utensils, a small colander, toaster bags (you put your gluten-free bread in them to protect from gluten crumbs in a toaster) -- I think these things are listed in the Newbie 101. Put them all in a box & when you get rooms make sure you get a kitchenette & cook your own meals. You can not count on local places even when not busy to know all the rules or even for you to be able to TELL them all the rules. They just don't know how to be careful enough. WE make mistakes, how can we expect them to get it right????

When you took the trip, you may have just been on an "off" phase with the rash at that time. It can & does come & go at will even though you are eating gluten-free. It's going to take time. I hope you will not be as long as I have been but it's possible. I STILL get itchies. 400,000% improved but there are still antibodies under my skin that haven't left yet. I get days, 1 or 2, or 3 when I have nothing but then there are days when I do. They don't itch 24/7 anymore though & there are hours in between itchy "spells". 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Doorknocker Newbie

Good thing I don't like oatmeal!  I did know it was bad for me to eat, long before I got diagnosed.  :P   I never liked it.

 

I have a coffee grinder that is used only for the bird food I grind, but I never thought about the dust.  I guess I'll be getting masks and doing a lot of hand washing.  I only grind once a month and I always wash my hands after feeding or touching them, even if I never touch a crumb of their food.  I rescued them both none years ago and they have five year lifespans, so somehow I'll figure it out so they can live out their lives with the people they know and love.

 

Right now I have Neutrogena shampoo and conditioner and a Garnier leave in.  My hair hasn't been cut in well over a year and it was long and curly and a mess before I got the DH rash.  I haven't had it cut since.  I don't even know what to do with it anymore and until the rash clears up some, I don't really care.  I can't use a blow dryer or flat iron or anything with heat, so a ponytail it is.  My only issue with that is sometimes the weight of my hair (it's really thick!) pulls on my open wounds, and that hurts and is irritating.  I do call or google products I am not sure about - the problem is, it seems EVERY product is questionable and it takes a while to figure all that out.  I'm learning this. There is SO MUCH to learn! 

 

I can switch the dogs to gluten free, but I think the older dog already is.  She has a sensitive belly. Most times I just make her rice and chicken on my own - it helps her tolerate her medications better with less stinky gas!  The puppy in my pic, I'll have to check the package. I think both dogs are getting baths tomorrow. 

 

I really appreciate all your talk and your links.  There is so much to learn about gluten free.  Except in the summer, I cook almost every meal at home but when it's warm here my husband likes to take out the motorcycle, so we end up eating out a lot more.  Not so much this summer because I've been sick, but we did take that trip and he wants to do a final summer one this coming weekend.  We camp, so stopping at a local store and getting plain meat to grill is definitely possible and I can pack small snacks to eat for breakfast.  I am so bloated that I really don't eat more than twice a day. 

 

For anyone else that might be following this thread for its original content:  as long as I remember to take the pepcid (I got the Walgreens generic brand which is gluten free) and I use the steroid, it's not so fire ant-like and it's mostly tolerable.  I just want it to go away!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,730
    • Most Online (within 30 mins)
      7,748

    Steve-n-Portland
    Newest Member
    Steve-n-Portland
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Marie70
      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
×
×
  • Create New...