Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Disappointed


zippy

Recommended Posts

zippy Newbie

I just got my green silicon bracelets from the university of maryland, these honestly look cheaper than ones I've seen at the dollar stoor, and the imprinting is even much more difficult to see. I'm not even sure I want to wear this. I've heard the university of chicago has them based on posts, but I have not been able to locate them. I like the angelic groove bracelets, am I correct that a total of 30% goes to celiac programs?? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

I was disappointed too. I bought the adult size, and they are huge!! Or maybe I have tiny wrists, but OMG, they went up to my elbow - not my wrist. Also, National wildlife federation's bracelets are green (as well as a wilderness program, forget which one) - couldn't they have picked a more unique color? I haven't seen teal or baby blue anywhere.....or even blue for that matter. Or orange. Or dark purple. Come on, folks that designed these, a little creativity goes a long way.

zippy Newbie

I went ahead and ordered the angelic grooves bracelet, engraved with celiac, you can order based on your wrist size, and a good portion goes to celiac groups. :D

jenvan Collaborator

that stinks...good to know before i ordered them though! maybe celiac needs the green ribbon idea...i wonder if green is already taken ? ooo, teal...that would be pretty :)

bluelotus--sounds like you need to turn that bracelet into an arm band ! or a choker perhaps ? :)

elonwy Enthusiast

I bought ten of them, and I really like them. The adult size is a bit big, but it doesn't reach my elbow. Every Color has 4-5 things it represents now, green is also biodiesel and leukemia.

I gave some to the students that work for me and one of them found out a friend of his has celiac, because he was wearing the bracelet. Mine hasn't left my wrist since I got it.

I don't really like jewelry so those other ones I would never wear.

They're very pretty, but sooo not me.

My 2cents.

Elonwy

elonwy Enthusiast

Also:

Light Blue : Prostate cancer

Blue : Drunk Driving

Dark Blue: Child Abuse, Colon Cancer

Green: Health, Ecology, Leukemia, Organ Donor, Celiac, BioDeisel

Pink: Breast Cancer, Birth Parents

REd: AIDS, Blood Donor, DUI awareness, substance abuse

Yellow: Come Home ( troops), General Cancer

Orange: Hunger, Lupus, Racial Tolerance

White: right to LIfe, Free Speech, Alzheimers

Black: Mourning, Melanoma

grey: Diabetes

Gold: childhood cancer

Purple: sexual/domestic violence, childhood cancer

In case anyone was wondering. They've gotten so popular you can have them made for your soccer team, so the colors have lost thier power, its the wearing and explaining why that makes the difference.

Elonwy

skbird Contributor

Yeah, I got a green one a couple of weeks back because I was at SF's DeYoung Museum on opening day and they gave them away for that event - bright green.

I think it's neat but they are everywhere, the color isn't much to do with it anymore. I haven't gotten an Angelic Groove bracelet but I did get the keyring and it's beautiful.

Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor
Also:

Light Blue : Prostate cancer

Blue : Drunk Driving

Dark Blue: Child Abuse, Colon Cancer

Green: Health, Ecology, Leukemia, Organ Donor, Celiac, BioDeisel

Pink: Breast Cancer, Birth Parents

REd: AIDS, Blood Donor, DUI awareness, substance abuse

Yellow: Come Home ( troops), General Cancer

Orange: Hunger, Lupus, Racial Tolerance

White: right to LIfe, Free Speech, Alzheimers

Black: Mourning, Melanoma

grey: Diabetes

Gold: childhood cancer

Purple: sexual/domestic violence, childhood cancer

In case anyone was wondering. They've gotten so popular you can have them made for your soccer team, so the colors have lost thier power, its the wearing and explaining why that makes the difference.

Elonwy

<{POST_SNAPBACK}>

Light purple is diabetes, I think. Or maybe that was March of Dimes...not sure

But no teal on your list! :rolleyes:

My gripe about green was that everyone I know has green bracelets b/c they are all "Greenies", so I never get asked about mine since it blends in. Kind of defeats the purpose (other than some money going to research).

zippy Newbie

I agree it has gotten overkill with the bracelets, I was just very disappointed in the quality of the univ. of maryland ones. Anyway, maybe my angelic grooves one will attract more attention to the cause anyway. A friend of mine has a similar pink beaded one for breast cancer and it definitely got my attention and it had a very touching story behind it. She found it on the ground at the breast cancer walk she participated in and was very upset that someone had lost it, tried to find an owner, but there were thousands of people there and it was the last day, many people had already left, so she decided to wear it in honor of the person who lost it and pray for the person it was worn in support of.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.