Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fodmaps Vs Paleo


Serielda

Recommended Posts

Serielda Enthusiast

So one of my other posts shows that I am being  heavily urged to  go Paleo post surgery to help me out after a big bag of crazy that  transpired this past weekend. So please pretend that I am a newbie as I am when it comes to  Paleo and  fodmaps which sound very similar.   Does anyone have or know online any info that will help me  not be sitting up  googling like a boss as I am still kind of ouchy. It would be a great help thank you in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

They are different.

Here is an link that show foods on clear DO and DON'T lists for FODMAP.

Open Original Shared Link

The best way I can explain FODMAP is gluten free plus other foods that are believed to exacerbate the symptoms often called IBS or SIBO.

The terms of Paleo are often argued amongst the primal and paleo folks, but if you stick with whole foods of meat, veggies, nuts and fruits (that you tolerate well) it can be helpful while a digestive system is healing.

For me, by the time FODMPs was suggested there were already many of allowed foods I could no longer tolerate. I'm not strictly paleo, but my diet of meat, veggies, small quantity of fruits and almonds falls closest to what is known as Paleo.

icelandgirl Proficient

Ooh...good thread! I was just thinking about asking if anyone has tried any or all of: SCD/FODMAPS/Paleo...and what they believe has worked for them. What did or didn't work, etc. Still trying to figure out the rest of my issues.

Serielda Enthusiast

Thank you for replies so far.

GottaSki Mentor

Hang in there :)

icelandgirl Proficient

Great link Lisa...thanks for sharing that.

Have you decided anything yet Serielda? I've cut so much food out trying to figure out what bothers me...The list for FODMAPS has quite a bit on it that you can eat still. I may try it.

GottaSki Mentor

You are welcome.

 

In my opinion, those that do not improve with strict removal of gluten after six months need to find what the right group of foods is for them.  It took me nearly four years to find the optimum foods for me....beyond frustrating, but worth the effort.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Serielda Enthusiast

I am  doing more  research than a freaking scientist does I feel at the moment. I keep saying onward and upward but wow.. Just when you feel you figure this mess out,,, bam!!

You are welcome.

 

In my opinion, those that do not improve with strict removal of gluten after six months need to find what the right group of foods is for them.  It took me nearly four years to find the optimum foods for me....beyond frustrating, but worth the effort.

GottaSki Mentor

I am  doing more  research than a freaking scientist does I feel at the moment. I keep saying onward and upward but wow.. Just when you feel you figure this mess out,,, bam!!

 

Been there, done that and still am. 

 

I could have written your exact post many times...as recently as a year ago.

 

For better or worse we have learned to never think we have solved the complete puzzle...I have had three major periods of improvement since diagnosed with Celiac Disease in 2009.  Each was followed with a flare that was worse than any previous flare which made us beyond frustrated that each time we thought we had the solution I was struck back down.

 

What I have learned after the last two periods that I call my "Human Amoeba" stages (months of severe flare and brain fog that becomes brain numb along with loss of all use of muscles and tremendous joint pain) that I need to accept making adaptations to my world while continuing to research and work with the best doctors I can find to gain more usable hours in the day.

 

How's that for a bummer?  Amazingly, I remain extremely hopeful and eager to learn as much as I can about how this silly body of mine works -- added bonus is my kids and grands all have symptoms similar to mine throughout my life so I am excited that their lives will be greatly improved by what I continue to learn.

 

Hang in there and keep researching...none of us is identical, but many of us have common symptoms and issues.  You aren't alone in this struggle.

Serielda Enthusiast

First I want to make this clear, I am not trying to come across as a whiner, or looking a sympathy hound aka sob sister, that is not my m.o. However where I live in Louisiana food is a big part of get togethers, but alchol is a massive one over food.  I was rejoicing that there was products like New Planet on the market and sold here in a number of places but with  current events now even that is taken away( or it seems). I do not have a drinking problem as I am not really a drinker exept on new years and once in a while occassions that are trust me precious few, as I am a advocate for moderation and if the event seems worthy of a toast or what not. I know I am preaching to the chior on this but this just flat out bites the big one.  When the celiac diagnosis came forward it wasn't so hard as I was a vegan until this nightmare, so that helped with the food angle. But now its like ok so what do I get to do at social events?

Been there, done that and still am. 

 

I could have written your exact post many times...as recently as a year ago.

 

For better or worse we have learned to never think we have solved the complete puzzle...I have had three major periods of improvement since diagnosed with Celiac Disease in 2009.  Each was followed with a flare that was worse than any previous flare which made us beyond frustrated that each time we thought we had the solution I was struck back down.

 

What I have learned after the last two periods that I call my "Human Amoeba" stages (months of severe flare and brain fog that becomes brain numb along with loss of all use of muscles and tremendous joint pain) that I need to accept making adaptations to my world while continuing to research and work with the best doctors I can find to gain more usable hours in the day.

 

How's that for a bummer!  Amazingly, I remain extremely hopeful and eager to learn as much as I can about how this silly body of mine works -- added bonus is my kids and grands all have some symptoms to mine throughout my life so I am excited that their lives will be greatly improved by what I continue to learn.

 

Hang in there and keep researching...none of us is identical, but many of us have common symptoms and issues.  You aren't alone in this struggle.

icelandgirl Proficient

I am  doing more  research than a freaking scientist does I feel at the moment. I keep saying onward and upward but wow.. Just when you feel you figure this mess out,,, bam!!

I do the same thing...I'm always researching...trying to figure out something. It's exhausting...but if I figure out anything that helps it will be worth it.
GottaSki Mentor

I drink Red Wine with no issue...suprisingly as it is high in histamine, but I don't question it...I just enjoy it :)

 

Have you already lost other alcohols like vodka?

 

And you aren't a whiner because you are frustrated, but same rule...keep trying to find something that works with your body.

 

Glad to hear you are able to attend social events...it's been difficult for me to attend anything after 3pm for most of the last 15 years so I celebrate every time I can go out...with or without wine in tow ;)

 

First I want to make this clear, I am not trying to come across as a whiner, or looking a sympathy hound aka sob sister, that is not my m.o. However where I live in Louisiana food is a big part of get togethers, but alchol is a massive one over food.  I was rejoicing that there was products like New Planet on the market and sold here in a number of places but with  current events now even that is taken away( or it seems). I do not have a drinking problem as I am not really a drinker exept on new years and once in a while occassions that are trust me precious few, as I am a advocate for moderation and if the event seems worthy of a toast or what not. I know I am preaching to the chior on this but this just flat out bites the big one.  When the celiac diagnosis came forward it wasn't so hard as I was a vegan until this nightmare, so that helped with the food angle. But now its like ok so what do I get to do at social events?

GottaSki Mentor

ps...for those reading along...most folks improve with the complete removal of gluten within the first year.

 

for some it can take more to heal the damage caused by celiac disease...once this happens they usually get many more foods back in their diets.

NoWhammies Newbie

I've written cookbooks for both Paleo and FODMAP. While there are similarities, FODMAP is actually more restrictive than paleo in a lot of ways. However, the good thing about FODMAP is you do it for about four to six weeks as an elimination diet, and then you slowly begin reintroducing food groups again to see what you tolerate. Paleo is, of course, a lifestyle. I would actually do this: go Paleo FODMAP at the same time. Stay that way for about four weeks. Then, reintroduce the FODMAP groups one at a time, about a week per group, to see if you have any reaction. That would be my suggestion, since the two are not mutually exclusive.

icelandgirl Proficient

Hi Nowhammies...have you done FODMAPS? If so...what did you figure out? I'm really thinking about trying this because I think it may be part of my puzzle. In recent times both pears and watermelon have made me very bloated. Also...since you write cookbooks...is there one you could recommend for this plan?

NoWhammies Newbie

Luckily I haven't needed to, but I did write a low-FODMAP cookbook, so I'm quite familiar with the system. If my symptoms hadn't cleared after I made sure there was no cross contamination, then low-FODMAP was next. I do think it's a good plan that works for a lot of people.

icelandgirl Proficient

Can you recommend a cookbook to get started?

icelandgirl Proficient

Thanks for the recommendations NoWhammies.  My library has the book by Sue Shepard.  I put it in my holds.  I'm number 7 in queue for it, but hopefully it will come soon.

BoJonJovi Newbie

Here is my diet. Call it Paleo if you want. I am a bit pale so I guess it might fit whatever it is. 

I try to eat real food. About the only thing I eat that is processed is occasionally I eat Blue corn chips from Garden of Eating. They are non-gmo, gluten free. I also occasionally indulge in a bowl of ice cream. 

I have a few rules I loosely follow but are predominated by:

Make it real food. 
Make it food that is alive meaning it will naturally spoil fairly rapidly on its own. Live enzymes. 

Nothing with corn syrup, fructose, glucose. This is more of a rage against the machine. I don't believe our government should subsidize something that makes Americans sick and obese. 

No more than 5 ingredients if buying something pre-made.  

I don't trust gluten free fair from restaurants that are not all in. If a youngster that has not been properly trained cuts a wheat bun then cuts mine, the kid just got me. If they stir a pot of soup then serve my veggies with that spoon, they got me. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.