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Feeling Very Old, Although I'am Only 19.

deppresed

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deppresed Newbie
deppresed
Posted

Hi. I think i have this awful desease. I will share my story with you, expecting some help, cuz I am lost. Sorry, my english is bad. I wont describe my feeling about this becouse its a different story...

 

Symptoms.

 

Back in my childhood I very often had had terrible headaches with vomiting. 1 day i didn't but I knew that the other day it will smack again. It lasted till I was 7 and started atending school. The vomiting stopped, heaches lasted futher i also was feeling weak and sick all the time. Since the 5 grade Started bloating with years it progressed. At 11 grade I started feel mild abdominal pain and constipation got growth to the level where i had to hide my big ballon belly. Now I feel as a helpless man with constant hurting belly.

 

White chalated guys never found anything wrong with me, except:

Increased stomach acidity when I was 5 years old. Osteohondrosis at about 8 grade of school. Acid refliux years ago.

 

Recently I have found an information about celiac desease and started a gluten free diet. I felt a little better but the absominal pain and bloating was still present, so to make sure i asked my GI to do celiac blood test. It came negative ( I was 2 weeks gluten free).After that i started eat gluten again becouse i read that its unable to detect this disease if you are gluten free for weeks. I ate gluten about 3 weeks after that and GI (luckily) decided to take a biopsy from small intestine to make sure that its not it. He will call me when he will know the answer.

 

ALL MY SIMPTOMS NOW:

Apdominal pain

bloating

bad digestion

disbacteriosis

fatigue

insomnia

some kind of schizophrenia

nervousnes

unalbe to concentrate

depression

feeling as if I am diying...

 

Does it sound like its possibly celiac?

 

 

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Scott Adams Grand Master
Scott Adams
Posted

It is certainly possible, and because you went gluten-free before testing, it is also possible that your blood test results are not accurate, as you really should be eating gluten daily for at least a couple of months before any blood tests.

1desperateladysaved Proficient
1desperateladysaved
Posted

I think you might be on the right track.  Make sure to get all of the tests for celiac you can while you are eating it.  The couple weeks you went gluten free may have not yet been enough to realize a difference.  As soon as you get your tests done, you can go gluten free again and give it some more time.

 

I wish you well in healing.

 

Dee

deppresed Newbie
deppresed
Posted
  • Author

It is certainly possible, and because you went gluten-free before testing, it is also possible that your blood test results are not accurate, as you really should be eating gluten daily for at least a couple of months before any blood tests.

 

Anti - tTG Iga test result was <0.1, when normal is 0 - 10.

1desperateladysaved Proficient
1desperateladysaved
Posted

Did they run a full panel, and do you know that the tests can false negative? 

Some people with celiac have IgA deficiency which would mean the tests could be false negative.  Are you having a biopsy? When all the tests are in, the final test would be to try gluten free for longer and see if it makes a difference.

 

Dee

deppresed Newbie
deppresed
Posted
  • Author

Did they run a full panel, and do you know that the tests can false negative? 

Some people with celiac have IgA deficiency which would mean the tests could be false negative.  Are you having a biopsy? When all the tests are in, the final test would be to try gluten free for longer and see if it makes a difference.

 

Dee

 

 

I don't know what a full panel means, but I gues no, becouse its only Anti-tTG IgA (that is written in the paper i have). Yes I already know that it can be false, but about IgA deficiency know nothing. The local GI even didnt knew that you gotta eat gluten for months to get right answers.... But she sent me to another who GI who did endoscopy to take biopsys for celiac, so now Iam waiting for an answer, witch should be on december 9'th. I am already gluten free and will stay at least for years, to get better, becouse I get anxious when I eat gluten.

1desperateladysaved Proficient
1desperateladysaved
Posted

Here is the list of full panel celiac tests as given by Mushroom in an older thread.  OOPS I can't insert it, but all I did was type to search (in google) Celiac full Panel and I got the thread.  There are around 5 tests included.  If you don't have the total IgA test you can't know if you are deficient in IgA.  If you are deficient those tests won't be accurate and one would try IgG tests instead.

 

I can understand not doing the gluten challenge.  All of your tests have some chance of being falsely negative while not on gluten, though.  IF you have healed they should be negative, I mean.  It would be nice to know if you have celiac, but if you are convinced to stay on the diet 100% forever; you should do fine.

 

We don't guarantee that doctors will know everything!  It is so good that you are looking into this yourself and finding answers.

 

Best wishes as you are healing.

 

Dee

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deppresed Newbie
deppresed
Posted
  • Author

Here is the list of full panel celiac tests as given by Mushroom in an older thread.  OOPS I can't insert it, but all I did was type to search (in google) Celiac full Panel and I got the thread.  There are around 5 tests included.  If you don't have the total IgA test you can't know if you are deficient in IgA.  If you are deficient those tests won't be accurate and one would try IgG tests instead.

 

I can understand not doing the gluten challenge.  All of your tests have some chance of being falsely negative while not on gluten, though.  IF you have healed they should be negative, I mean.  It would be nice to know if you have celiac, but if you are convinced to stay on the diet 100% forever; you should do fine.

 

We don't guarantee that doctors will know everything!  It is so good that you are looking into this yourself and finding answers.

 

Best wishes as you are healing.

 

Dee

 

Thank you very much. 5 days gluten free combined with antifungals (caprilyc acid, oregano oil, grapefruit seed extrack) and probiotics does wonders! Altough I still feel disbacteriosis, but most of what I am concerned now is worms, cuz I was in the 2 diagnostics centers and they both told me i got ascariasis. I think it has a lot to do with feeling of stopped food movement through the guts. So I am going now through heavy shi*, but I am progressing, thats really nice, and thank you again. In the end after biopsy results or further actions if it is neccesery I will inform here about everything what bothered me for so long time and how i healed it, in case someone can realate to this. For the doctors you are right, they can't know everything, but they should if they are giving diagnosis like "irritated bowel syndrome" becouse people believe in it, even if its false.

 

Best wishes too to you :)

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