Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspicious Of Having Celiac


J123-123

Recommended Posts

J123-123 Newbie

So I started having digestive issues at about age 19, and I'm 22 now. I had a blood test for Celiac about 2 years ago and it came back negative but I hadn't eaten anything with gluten in it for a few days beforehand.

 

 

When my symptoms started, they were very irregular and it took my about a year and a half before I tried cutting wheat out to some success. I still get digestive symptoms such as gas, bloating, diarrhea, and constipation (lifelong so not out of the ordinary) when I cut out gluten for some time, but whenever it gets reintroduced somehow I get the symptoms back majorly.

 

 

For instance, I hadn't eaten anything with gluten for 3 weeks recently and ended up having pizza with friends only to have intense stomach pain (rare for me) and significant digestive distress for the rest of the day.

 

 

I am not sure if I should get retested for Celiac though as it isn't only wheat that does this to me. More recently, many different foods seem to have the same effect such as many vegetables and fibrous foods. 

 

 

Any opinions would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

If you do decide to go get retested be sure to consult with your doctor. Normally you need to eat gluten daily for a few months before any tests can be done.

nvsmom Community Regular

I found that other foods gave me the same symptoms as celiac disease too; it was not just gluten but that has improved over the last couple of years. I assumed it is because my intestines have healed so other foods do not bother me as much - dairy especially has improved.

 

It sounds like you have undiagnosed celiac disease or the more common non-celiac gluten sensitivity(NCGS), which has the same symptoms as celiac disease.  Either way, you should probably avoid gluten all the time because if it is celiac disease, you will be affecting your health if you consume small amounts of gluten... actually, consuming gluten if you have NCGS isn't much safer.

 

As Scott said, if you do want to retest for celiac disease, you'll need to consume gluten for 2 or 3 months to get an accurate blood test - not a pleasant thought.

 

Good luck with whatever you decide to do, and welcome to the board.  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,066
    • Most Online (within 30 mins)
      7,748

    lgcalvitti
    Newest Member
    lgcalvitti
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.