Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"breaking Up" With Non-Celiac Roommates


jessiej

Recommended Posts

jessiej Newbie

Hi! I'm brand new to this forum but I was diagnosed in August 2012 so I'm not new to living gluten-free -- hello everyone! :)

 

I decided to write here because I have a conundrum with my living situation. I live with three roommates who are dear friends and who have generally been supportive of my lifestyle. The only thing is -- and I'm sure anyone who's lived with people without food restrictions might agree -- they've never really understood the degree I have to go to to stay healthy. We have a shared kitchen and I keep all of my stuff away from theirs, but lately it's felt futile to do so. They bake with non-gluten-free flour, cut bread right on the counter tops, and the toaster area is never clean and the crumbs travel from there. We're also in our early 20s and they throw parties a lot, so I'm 99% sure beer is covering every surface in our home. I wipe things down every day and run my items through the dishwasher constantly but I know it's not enough to stop the CC. 

 

I've lived with them for almost a year and I've definitely had classic glutenings come up (that AHH, KILL ME kind of glutening we all know so well!), but lately I've been feeling almost like I did pre-diagnosis when I was eating my weight in gluten (haha). I have chronic joint pain, I've been losing hair, I'm exhausted, I have bags under my eyes, I have had wicked brain fog, and I haven't had normal BMs for weeks. I can barely stomach more than gluten-free pasta or gluten-free breads, and I know not eating as many fruits and veggies as I'm used to isn't helping my health problems.  I am not near my regular doctor, but I have a feeling if I had another biopsy done now it would show that I've backslid in my healing process due to chronic cross contamination issues. I'm also a super people pleaser and I have tried to hide my symptoms as best I can so as not to upset anyone - not fair to them or me, I know! :(   

 

I've come to the conclusion that a shared kitchen just doesn't work for me right now, at least not this shared kitchen. I have the means and opportunity to move out - I found an apartment nearby that's a one bedroom so I could have a truly gluten-free kitchen -- but I'm worried about hurting them and having a conversation with them about leaving because I truly love them and know they would never mean to contribute to my feeling ill. I also know it's my responsibility to take care of my health, and I can't ask them to give up cookies and beer without feeling like a really awful roommate. It's definitely time to move on.

 

Have any of you dealt with "breaking up" with non-celiac roommates? How have you handled the conversation and making sure you don't convey blame when you explain your reasons for moving out? I am giving them 30 days notice, so that's not a concern! 

 

Thank you so much and I'm excited to check out the rest of the forums here!!

Jessi 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I feel for you.  Most of us had to change our living arrangements in some way.  I think all you can do is say something like:  That you don't want to be a burden to them, but you feel that for the sake of your health you need to have a gluten free kitchen.  Tell them that you don't expect them to join in that, so you found your own little apartment.

 

When I announced my plans to the extended family, I tried to keep it light.  I blamed celiac.  I said, "Of all the dumb things I have to do for celiac.  now I will need to bring my own food for the holiday meal. I hope you do not mind and I ask that you help me hide it from Mom."  The arrangements were made in advance, so nobody was surprised and everything went as good as could be expected.  Perhaps you can say something similar blaming celiac and not them.

 

Hopefully, they will understand.  I actually have a family which I am tied to at my house.  They didn't understand how come I could no longer supply their favorite foods in the beginning. But when they saw my health transforming betore them, and experienced some of the reactions with me;  they now look out for me and understand.  If your people don't understand right away, perhaps they will understand as your health improves.  I hope so.

 

Best wishes for a return to help.  Can you cook in a separate spot in an electric skillet or crock pot for now?  Moving will use up more energy than you have perhaps.  Then again maybe someone will pitch in to help.

SMRI Collaborator

If they are real friends, this should be a non-issue and they will understand that you need to do what you need to do.  If not, find new friends.

notme Experienced

i agonized over how i was going to tell my sister i was more comfortable staying at my bff's house instead of hers when i come to visit.  i tried to break it to her gently, when she butted in and said:  so, you are telling me you would rather stay at melanie's when you visit?  i said yes, because it's easier for me to have the peace of mind (she still has gluteny kids at home - boys - who tend to be crumb-y)  blah, blah, blah.  she said:  o thank God.  you are a pain in the ass.  i worry all the time we are going to screw up and make you sick!   

 

and we laughed and laughed.  :D  so, maybe they are having a hard time with worrying about you, too!

Pegleg84 Collaborator

It's not a fun situation, but your health is the most important thing. Blame the disease, not your friends, and be clear that it will be easier on everyone if you're on your own. Help them find a new roommate, hopefully the friendships will stay, even if you're not there.

Pretty much since going gluten-free, I've lived on my own mostly for the piece of mind of controlling my own kitchen. Handling rent on your own is not an easy thing to do in this city, but it's been worth it. Now my gluten-eating BF and I are living together, but the kitchen is my domain, and he's been super super careful. No problems as of yet.

Unless your roommates/significant others/family are willing to truly commit to keeping you safe, then it's better to go it alone. 

Good luck with the move!

Also, welcome to the forum!

  • 2 weeks later...
Purpletie3 Newbie

Life is short and you have to do what is right for your health...If you think you will be healthier in your own place then make the move. If you think there is a way to mediate the damage in your current home...give it a try. If you have space...your own kitchenette~ Cabinet, toaster oven and def cooking pans and utensils sponges etc...  Trust me...I know the frustration trying to make a change with a gluten loving boyfriend and teen. However, when they see me get sick they know...this is real...and even a careless crumb off a piece of bread can contaminate me. Best of luck with your choice!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.