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Recent Activity
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- knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Struggling to get into a good pattern
Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your... -
- knitty kitty replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Weakly positive DGP IgA
Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have... -
- knitty kitty replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
almost a year in recovery - so many questions about to give up
Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating... -
- Trina Zee replied to Trina Zee's topic in Introduce Yourself / Share Stuff2Need GI doctor referral
Thank you! I appreciate this -
- Awol cast iron stomach commented on Scott Adams's article in Diagnosis, Testing & Treatment6New Blood-based T Cell Celiac Disease Diagnostic Test Eliminates Prolonged Gluten Challenge (+Video)
Glad to read they made a test that won't require a gluten challenge. It does sound like it maybe quite sometime before it is readily available. This is a good first step. I was unable to finish my gluten challenge, and would have preferred not to have even attempted if this test had been available to me. I am glad it sounds it maybe available for others with...- celiac disease
- celiac test
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By knitty kitty · Posted
Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your progress! -
By knitty kitty · Posted
Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have Celiac disease. Can you consult a gastroenterologist? Or ask your doctor to do so. Gluten Sensitivity can be a precursor of Celiac disease in people with Celiac genes. Since you've already got symptoms of Celiac disease and evidence malabsorption, an endoscopy with biopsies would be beneficial. It's can be so frustrating getting a diagnosis because doctors are not familiar with Celiac disease. Sending you encouragement! Keep us posted on your progress! -
By knitty kitty · Posted
Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating a high carbohydrate diet. You're eating plenty of carbs, but an insufficient amount of B vitamins needed to turn the carbs into ATP, the energy cells use to function. The more carbs one eats, additional Thiamine Vitamin B 1 is needed. The RDA is based on the minimum amount needed daily to prevent disease, not the amount for optimum health. SIBO is often a result of a high carbohydrate diet, and could explain the burping, gas produced by SIBO bacteria snacking on your extra carbs. Thiamine deficiency symptoms include cramping in feet and legs. Thiamine deficiency is called Beriberi meaning "I can't, I can't!" because of the inability to walk. Gastrointestinal Beriberi symptoms include gastroparesis (movement of food through the intestines slows down), or digestive upsets, diarrhea or constipation, abdominal pain. The gall bladder may become dysfunctional. The pancreas can have difficulty producing digestive enzymes and insulin. Type Two diabetes may occur. Thiamine deficiency also causes paresthesia, that feeling of numbness or pins and needles. Thiamine deficiency can cause ED and genital numbness. Niacin B3 deficiency causes symptoms in the skin that can be mistaken for psoriasis. Infections like Covid require more vitamins, especially Thiamine and Vitamin C, to fight the infection. With malabsorption, all the vitamins and minerals are affected. Thiamine interacts with each of the seven other B vitamins in the energy cycle. Vitamin D can help calm the immune system. The Autoimmune Protocol diet can improve intestinal health. It can starve out SIBO. The AIP diet is very strict, but eating a diet that is easy on the digestive system allows time for it to heal. Then more foods can be added back in with less chance of a reaction or sensitivity. You should definitely talk to your doctor about Thiamine deficiency soon. If not corrected promptly, damage may not be reversible, and could be life threatening. Keep us posted on your progress! -
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By Rejoicephd · Posted
Thank you very much @trents! This is super helpful. The only time I wasn’t sick after my diagnosis was when I was ordering and eating certified gluten-free meals from a company. I did that for a few months right after being diagnosed and then I started to try to figure it out how to cool and eat gluten-free meals myself. I think I’m probably getting low levels of gluten exposure and maybe that’s what’s making me ill. Possibly other things also not helping the situation (like dairy). Anyway this gives me something to focus on to see if it helps. So thanks for that!
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