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Hey Jd....and Waitingindreams


GF Lover

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GF Lover Rising Star

Hi JD,

 

Check out this link.  This is how you break down a chicken to make stock.  It has vegies and stuff so only add the ingredients that you tolerate.

 

Open Original Shared Link

 

Colleen


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Waitingindreams Enthusiast

Thanks! :) I definitely need to stick to whole foods and no grains for awhile. This is very helpful.

GF Lover Rising Star

Ok guys.  My good friend IH gave me these links for you.  It's based on the Fasano Diet for Refractory suspected cases.

 

Here is the article:  Open Original Shared Link

 

And the Diet Guide Lines: Open Original Shared Link

 

This would be a great basis for you two to start with.  I really think it would give you guys a good place to start from scratch.

 

Colleen

Waitingindreams Enthusiast

Thank you for looking out for us :) I am on the world's strictest diet...a dairy free version of the Specific Carbohydrate Diet. I think I had the soup before I was on the diet, either that or I thought the broth would be harmless enough. I definitely learned my lesson! Even though it was gluten/soy/yeast free, something definitely bothered me in that broth. I guess I would officially be diagnosed with refractory? I hope not...I'm not sure what the requirements are for that. I just saw it as the gluten free diet not being enough, so I cut out more foods that seemed to bother me. Oi. But yes, I am not eating any processed foods or grains. 

jddh Contributor

Thanks for the info Colleen. I have essentially been on this diet for 2.5 weeks—eating almost nothing but my Jewish dad's chicken soup, which coincides nicely with this thread.

 

Plus as mentioned in the other thread, I ran my entire diet though GlutenTox strips, so assuming their effectivity, I am officially contaminant-free.

 

So for my part, probably need to break down further and trial even the ingredients that I know are gluten-free.

 

@Waitingindreams: refractory means you having DEFINITELY been gluten free for >6 months, and a biopsy showing continued damage. So you'd need an endoscopy to show that. In the mean time, suffering some set of symptoms despite a gluten-free diet might put you in the camp of NRCD, but hopefully the symptoms don't necessarily mean continued histological damage (flattened villi).

 

NRCD is a nicer place to sit :) 

Waitingindreams Enthusiast

@jddh - Thank you for the information! I have been gluten free (apart from any 'accidents') for about 1.5 years now...but I never had an endoscopy from the beginning, so I have no idea where I started or where I sit now. I do think my villi are getting better, because I can tolerate dairy better than I was able to - (I'm lactose intolerant) so that's a good sign! I keep forgetting that endoscopies/biopsies are part of the usual diagnosis process because I never was told that. My doctor just called me after my lab tests were in and said "You have celiac disease". I think I'm going to stick with my "crazy diet" and hope for some good results. :) I don't think I'm necessarily in the NRCD area - I think my gut just has a long way to go and I had other food intolerances I wasn't addressing in the beginning (like soy)but I also have candida and a hernia, so...it's a lot to deal with in terms of what I can/can't eat. 

 

If I could, I would just live off of water for like a year. That outta heal everything up!  :D

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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
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      @Knitty_Kitty Noted with appreciation.
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      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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