Hey Jd....and Waitingindreams

[GF Lover]

Hi JD,

 

Check out this link.  This is how you break down a chicken to make stock.  It has vegies and stuff so only add the ingredients that you tolerate.

 

Open Original Shared Link

 

Colleen

[Waitingindreams]

Thanks! I definitely need to stick to whole foods and no grains for awhile. This is very helpful.

[GF Lover]

Ok guys.  My good friend IH gave me these links for you.  It's based on the Fasano Diet for Refractory suspected cases.

 

Here is the article:  Open Original Shared Link

 

And the Diet Guide Lines: Open Original Shared Link

 

This would be a great basis for you two to start with.  I really think it would give you guys a good place to start from scratch.

 

Colleen

[Waitingindreams]

Thank you for looking out for us I am on the world's strictest diet...a dairy free version of the Specific Carbohydrate Diet. I think I had the soup before I was on the diet, either that or I thought the broth would be harmless enough. I definitely learned my lesson! Even though it was gluten/soy/yeast free, something definitely bothered me in that broth. I guess I would officially be diagnosed with refractory? I hope not...I'm not sure what the requirements are for that. I just saw it as the gluten free diet not being enough, so I cut out more foods that seemed to bother me. Oi. But yes, I am not eating any processed foods or grains. 

[jddh]

Thanks for the info Colleen. I have essentially been on this diet for 2.5 weeks—eating almost nothing but my Jewish dad's chicken soup, which coincides nicely with this thread.

 

Plus as mentioned in the other thread, I ran my entire diet though GlutenTox strips, so assuming their effectivity, I am officially contaminant-free.

 

So for my part, probably need to break down further and trial even the ingredients that I know are gluten-free.

 

@Waitingindreams: refractory means you having DEFINITELY been gluten free for >6 months, and a biopsy showing continued damage. So you'd need an endoscopy to show that. In the mean time, suffering some set of symptoms despite a gluten-free diet might put you in the camp of NRCD, but hopefully the symptoms don't necessarily mean continued histological damage (flattened villi).

 

NRCD is a nicer place to sit  

[Waitingindreams]

@jddh - Thank you for the information! I have been gluten free (apart from any 'accidents') for about 1.5 years now...but I never had an endoscopy from the beginning, so I have no idea where I started or where I sit now. I do think my villi are getting better, because I can tolerate dairy better than I was able to - (I'm lactose intolerant) so that's a good sign! I keep forgetting that endoscopies/biopsies are part of the usual diagnosis process because I never was told that. My doctor just called me after my lab tests were in and said "You have celiac disease". I think I'm going to stick with my "crazy diet" and hope for some good results. I don't think I'm necessarily in the NRCD area - I think my gut just has a long way to go and I had other food intolerances I wasn't addressing in the beginning (like soy)but I also have candida and a hernia, so...it's a lot to deal with in terms of what I can/can't eat. 

 

If I could, I would just live off of water for like a year. That outta heal everything up!