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Celiacs On Long Island,new York

BonLI

By BonLI
in Introduce Yourself / Share Stuff

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BonLI Newbie
BonLI
Posted

Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

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danikali Enthusiast
danikali
Posted
Hi!  I'm new to your site.  I'm looking for support groups in the NY metro area (preferably Long Island).  I'm a recently rediagnosed celiac.  I was about three when I first began living on bananas and rice.  I have lots of questions.  Anyone willing to help?

Thanks, BonLI

<{POST_SNAPBACK}>

I live in Manhattan, and I don't have any answers for you as I am just learning about this now and not done with the whole testing process yet. But I'm interested to know too, so I'm going to keep an eye on this post!

  • 4 weeks later...
Guest arnelwendy
Guest arnelwendy
Posted

I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

Suezboss Apprentice
Suezboss
Posted
I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

I'm on LI Too and looking for a support group... Is there contact information? I believe I was in contact with someone back in July, but then never heard back from them... ;)

eeyor-fan Contributor
eeyor-fan
Posted
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

I'm just over the bridge from you in NJ. Just over the Arthur Kill. I know of a support group in East Brunswick, but I just stick with online groups...easier than being stuck in traffic, and made some great friends this way.

Hugs

Bridget

jkmunchkin Rising Star
jkmunchkin
Posted

I am in Westchester. I don't know of any groups in LI. I mainly stick to online but have found the Westchester Celiac Group holds a lot of events and may start to get involved with them. There is a meeting at Whole Foods tonight that I want to attend.

  • 4 months later...
fanny Apprentice
fanny
Posted

Hi, I'm from Queens NY and also new. Looking for support group in the tri state area or on line.

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  • 1 month later...
laurieb119 Rookie
laurieb119
Posted
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

HI,

JUST THOUGHT I WOULD OFFER A SUGGESTION. IF YOU GO TO MEETUPS, ON CELIAC. YOU WILL SEE A GROUP. I DO NOT KNOW THE ACTUAL WEBSITE. BUT I CAN FOWARD YOU AN EMAIL FROM THEM IF YOU WOULD LIKE. I HAVE NOT YET BEEN, B UT THEIR MEETINGS ARE MONTHLY AT DIFF RESTAURANTS. AND IT LOOKS LIKE IT MUST BE FUN.

ANYWAYS LET ME KNOW IF YOU NEED MORE INFO. IN ANY CASE I WOULD LOVE TO BE IN TOUCH WITH MORE CELIACS AS WELL. I FEEL LIKE A LONER, NOONE IN MY FAMILY BUT MYSELF, AND IT IS SO REPETITIVE TELLING PEOPLE WHAT CELIAC IS, AS I AM SURE YOU CAN RELATE.

BE WELL, LAURIE

darlindeb25 Collaborator
darlindeb25
Posted

I am a member of the Suffolk County Celiac group--this is one of the coordinators of the group-- For More Information- Michael Thorn, Event Coordinator (631) 395-5071 or email pepi0912@aol.com for more information--I would put "celiac info please" in the subject line. The group does meet on Higbie Lane in West Islip--if I can be of any help, email me at darlindeb25@aol.com --------Deb

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    • AlwaysLearning
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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