Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Stop Losing Weight...

mmalaski

By mmalaski
in Related Issues & Disorders

Recommended Posts

mmalaski Newbie
mmalaski
Posted

Hi. I've been gluten free for alittle over 2 months. I was told I had gluten intolerance because my blood test came back negative, but have had bowl issues since I was a child. My doctor also discovered I had a vitamin d deficiency, which is what triggered the visit to the GI.

Over the last months I have not stopped losing weight. I was 182 lbs when I started and I am currently at 166, and seems to drop a pound a week. I am constany snacking on carrots, apples, peanuts, granola etc. I feel like I am eating all the time.

I eat 3 meals a day. The stupid thing is that before going gluten free I couldn't loose weight no matter how hard I tried. Any recommendations on how to stop the weight loss and keep a healthy weight?

I'm about 5 lbs away from what I weighed when I was 18...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Shell156 Apprentice
Shell156
Posted

Hi there!

 

You sound like me a little after I went gluten free. The weight loss started to worry me when I weighed less than I did at 13!!! Crazy, huh?

 

The thing is, when my BMI was about 19, the weightless just stopped. Maybe this is what a healthy weight is for me? I didn't look particularly overweight before, but I did want to lose weight. After being at this weight for 8 years now, I realized I quite like it! I'm small boned so a BMI of 19- 19.5 looks fine on me.

 

Is your BMI below 18.5? I wouldn't worry too much. I couldn't lose weight before going gluten free either, I think my body was starving for nutrition! Afterwards, I just became a healthy weight and stayed there.

cyclinglady Grand Master
cyclinglady
Posted

I agree with Shell. Do not worry as long as you stay within your BMI range.

  • 1 year later...
musickep Newbie
musickep
Posted

I think you have to heal your gut as well as being gluten free. I wonder what your bowel issues are?  Did you have an upper endoscopy with a GI? to ck out your small intestines to see what condition they are in?  Is the granola you are snacking on gluten free?   I was never told to heal my gut and it ended up hurting me in the long run....... and now I am healing my gut with the SCD diet because I have malabsorption and have been loosing weight all year (i was 135-140 and now 120). My stools were huge piles because the gluten-free food i was eating could not be digested.  And I hate to say it but Ive been Celiac for 23 years!   I must have had leaky gut and it never was healed and all the gluten-free food these days is just not healthy, and then you can have cross reactive foods when you have leaky gut - foods that leak into your bloodstream, and then your body attacks it as an invader and boom your allergic to it.  I am now on digestive enzymes, and even betaine hcl.  That is another thing that many people and doctors do not even know about - stomach acid. If that is off, ALL of digestion will be off.  We loose stomach acid with age, but we also can loose it due to parasites.   Anyhow, I wonder also if you ever got a complete stool anaylsis? that will also tell you issues with your stools.  It's the best evidence of how you are digesting and if you have any candida or parasites. Drs Data does this sort of test, you can ck them out online.  Blessings,  kp

Ennis-TX Grand Master
Ennis-TX
Posted

I would suggest more fats and protein in the diet, along with taking BCAA and yohimbine supplements between meals and before bed to help prevent muscle break down. Digestive enzymes before meals might also help you to get more out of what you are eating. Perhaps adding a protein shake to sip on throughout the day or a gluten-free meal replacement shake. Also check that granola and make sure it is gluten-free, and snack on more nuts and seeds. I hear you on the weight issues I had the same problem, on the bright side I am just lean muscle now with no fat at all. Look great just can't seem to get weight on.

  • 5 months later...
Anonymous Newbie
Anonymous
Posted

Yes, I was wondering about that too, perhaps this could allow my body to go to a more beneficial and natural weight. It is just soooooo weird, never been in that kind of situation before. The fast weight loss is disturbing but perhaps my body, hopefully, will regulate itself.

 

What a rough road!

Theri Apprentice
Theri
Posted
On 2/5/2015 at 10:21 PM, mmalaski said:

Hi. I've been gluten free for alittle over 2 months. I was told I had gluten intolerance because my blood test came back negative, but have had bowl issues since I was a child. My doctor also discovered I had a vitamin d deficiency, which is what triggered the visit to the GI.

 

Over the last months I have not stopped losing weight. I was 182 lbs when I started and I am currently at 166, and seems to drop a pound a week. I am constany snacking on carrots, apples, peanuts, granola etc. I feel like I am eating all the time.

 

I eat 3 meals a day. The stupid thing is that before going gluten free I couldn't loose weight no matter how hard I tried. Any recommendations on how to stop the weight loss and keep a healthy weight?

 

I'm about 5 lbs away from what I weighed when I was 18...

You are most likely going thru gluten withdrawal.  Try gluten free amino acid powder. You need more protien. Hold of on roughage until weight stabilizes. Then slowly add it back. It took me over 3 months to stop loosing weight. Get a free gluten scanner on your phone. It is great. I hope you have been informed gluten is in ketchup, lip products, toothpaste, meds., vitamins. The list goes on. Know what you ingest. Hope you feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.