Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiac Make A Kid Sick Enough That He Stops Going To School?


cwnhokie

Recommended Posts

cwnhokie Rookie

I'm just grasping for answers while we try to figure out what is going on with my 12 year old son.  He has been getting progressively sicker over the last 6 months to a year.  He complains of nausea, vomiting, headache, diarrhea, chills, hot flashes, fatigue and he just got over a kidney stone.  His episodes have been more and more frequent.  6 months ago it was for a few days every few weeks, then for a few days every week, now he feels good maybe a day or two a week.  He is now on home bound instruction for school.  Could it be Celiac that is making him feel this lousy?  Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

is he under a doctor's care?  

 

yes, celiac *can* make a person that sick.   if you suspect he may have it, you should get him tested BEFORE removing gluten from his diet, because it will make the testing inaccurate.  good luck :/  sorry that your son is feeling so ill :(

Ginkgo100 Rookie

I'm just grasping for answers while we try to figure out what is going on with my 12 year old son.  He has been getting progressively sicker over the last 6 months to a year.  He complains of nausea, vomiting, headache, diarrhea, chills, hot flashes, fatigue and he just got over a kidney stone.  His episodes have been more and more frequent.  6 months ago it was for a few days every few weeks, then for a few days every week, now he feels good maybe a day or two a week.  He is now on home bound instruction for school.  Could it be Celiac that is making him feel this lousy?  Thanks!

 

It definitely could be celiac disease. Kids with this disease died on a pretty routine basis (I seem to remember reading that 1/3 of all celiac kids died in any given year) before the role of gluten, and the importance of the gluten-free diet, was discovered. Most of the deaths were slow and painful due to malnutrition (malabsorption from damaged intestines). My own son was hospitalized for symptoms when he was barely a year old, which is how he was initially diagnosed.

 

I second the other person who said to NOT go gluten-free until after all testing is completed. Testing and formal dx are important for this disease because it affects your life so profoundly, and if a person stops eating gluten before testing, they could get a false negative. (It was the hardest thing in the world for me, when my son was 12 months old and in the hospital, after his antibody test was positive and we knew it was probably celiac, but he hadn't had the biopsy yet... because I had to make sure the poor kid ate at least some of the bread that came with his meals. Knowing it was probably making him sicker, but also knowing it would prevent a false negative test. Now I'm glad I did it. That positive biopsy result means I never have to second-guess myself when he cries over not getting a treat that has gluten, or when I'm explaining the gluten-free diet to a teacher.)

nvsmom Community Regular

Celiac symptoms can be quite severe in some - there are many adults around here who missed work because of it.  Getting him tested sounds like a good idea.

 

Best wishes.
 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,065
    • Most Online (within 30 mins)
      7,748

    Hoops
    Newest Member
    Hoops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.