Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative On Everything But Endomysial?

lisamhanderson

Recommended Posts

lisamhanderson Newbie
lisamhanderson
Posted

Does this make sense to anyone? I'm going to get the actual lab report tomorrow, but until then I'm going off of what the nurse told me. Negative for everything but weak positive for the edomysial antibody. From what I'm reading, this doesn't make any sense...

 

i have hashimoto's and my 3 year old was just diagnosed Celiac, which is why I got tested. 

 

Any help would be appreciated! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Let's see what tests were actually run and what the results were. It is possible that you are in the very early stages of Celiac Disease and havent built up enough antibodies yet? If that is the case, you could continue eating gluten and get tested again in 6 months to a year?

lisamhanderson Newbie
lisamhanderson
Posted
  • Author

Yes, I'm continuing with eating gluten as they're going to redo the blood test and I don't want to skew the results. I am 5 weeks pregnant and I'm reading that if I do have celiac that it can be damaging to the fetus to continue with a gluten containing diet. So, there's a bit of anxiety there... I am pretty good at Googling answers to things like this usually, but this seems to be an anomaly. 

 

Thanks for the reply. I'll just have to be patient and wait for the next set of labs! 

kareng Grand Master
kareng
Posted

Yes, I'm continuing with eating gluten as they're going to redo the blood test and I don't want to skew the results. I am 5 weeks pregnant and I'm reading that if I do have celiac that it can be damaging to the fetus to continue with a gluten containing diet. So, there's a bit of anxiety there... I am pretty good at Googling answers to things like this usually, but this seems to be an anomaly. 

 

Thanks for the reply. I'll just have to be patient and wait for the next set of labs!

Oh.... I did not know about the tadpole! That's trickier. I think, I would be gluten-free and worry about re- testing and eating gluten a year from now. Just my opinion.

nvsmom Community Regular
nvsmom
Posted

I think I would go gluten-free too, just to be safe.  Autoantibodies tend to linger in the blood stream anyways, so going gluten-free sooner rather than later is a good idea.

 

I've seen 2 or 3 people have a positive EMA IgA with a negative tTG IgA in the past few years on this board.  It is not common, but it does happen.

 

That test is VERY specific for celiac disease, 98-100% specific, so if you have a positive, you most likely have celiac disease.  A 0-2% chance that positive was caused by something else... That's pretty slim.

See page 12 of this report for the details: Open Original Shared Link

 

Plus you have a family history of celiac disease, and Hashi's which is strongly linked to celiac disease (I have it myself), and some symptoms too?.  I'd say that is celiac disease.  I don't believe in coincidences in medicine anymore.... Coincidence is doctor-ese for "I'm not 100% sure what is going on" or "I wasn't trained in this".   :rolleyes:

 

Best wishes and welcome to the board  :)

lisamhanderson Newbie
lisamhanderson
Posted
  • Author

Thank you so much for the informative response. I really appreciate it! 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,374
    • Most Online (within 30 mins)
      7,748
    Mamaness
    Newest Member
    Mamaness
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
×
×
  • Create New...