Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Neuropathy Caused By Celiacs Disease, Or Gluten Sensitivity?


casson

Recommended Posts

casson Newbie

about a month ago, i took diphenhydramine,dxm,phenyleprine, acetomeniphen in a mixture for a first time, and experience drowsiness, and then i noticed i loss my taste and my smell, over the weeks i noticed pins and needles on left side of body, but frequently on my right side as well. The loss of sensations is also apparent, it includes loss of sensations of bowel movement(not knowing poop until its about to exit), full or empty bladder, full or empty stomach(dont know when im hungry or not, just the fact that i still can eat. Other loss of sensation is, unable to feel breath in the lungs, and in the nose as well. I did experienced dry. mouth initially, but it was from the diphenhydramine, i have no idea what this is, could this sogrens? I also have tachycardia. vision issue, the eyes keep trying to refocus on images, gets blurry often (i do have some near sightness, but this was so sudden), as well as sparks, floaters on peripheral vision, increased in floaters.
the pins and needles also are on my left side, but have move all around my face, and now is on the right side. It seems to wax and wane as well. 1 week i have the pins and needles, the next its gone or diminished, but then it comes back with a vengeance and with new areas. mY SENSE of smell and taste never returns to a 100%, 90-95 loss, to 50% loss some weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

This sounds like something you should speak to a doctor about immediately.  It does not sound like Celiac to me.  The sudden onset of these symptoms makes this seem like a very serious issue.

casson Newbie

This sounds like something you should speak to a doctor about immediately.  It does not sound like Celiac to me.  The sudden onset of these symptoms makes this seem like a very serious issue.

I already went to the doc twice, the day after i noted the loss of smell and taste i went to the ER, they couldnt find anything. a month later, 2 weeks ago i went to my MEDI-CAL PCP, she found i was vit d deficient, i requested to check for more vit deficiencies, but only will do b12, and CBC. I have heard celiacs neuropathy. and a specialist 2 months from now. Is the neuropathy in celiacs because it can cause diabetes. They are going to automatically dismiss an MRI, because i had one 2 years ago, for the cause of tinnitus, but it showed up normal, they will base it off of that. I did have a basic celiacs tests 2 years ago as well, gliadin, endomyosin, were normal. I also have IBS and AA which has been associated with celiacs, How long does nueropathy for celiacs take to happen. I dont know if this is a international forum, but on government health care, welfare plan, so i dont get to chose when and what doctors to see.

cyclinglady Grand Master

Have you researched the drug for side effects?

cyclinglady Grand Master

Are you confused with the fact that an artery near the heart is called the celiac artery? Do you have an aneurysm located there? I have not heard about a celiac disease and aneurysm link. There is a link between celiac disease and type 1 diabetes and not type 2.

Both celiac disease and uncontrolled diabetes can cause neuropathies but yours presented so quickly. We are not doctors on this forum. Just a group of folks trying to help those who must adhere to a gluten free diet.

I wish you well.

casson Newbie

My apoligies, i went to the PRE-DIAGNOSIS, forum, under assumption someone might have insight if this is possible of celiacs disease, i have heard neuropathy caused by it, i just want to know if its possible. I have have researched the side effects of the Diphenhydramine ,dextromorphan,aceto, phenyl, and it can cause tachycardia,jerking, but its not suppose to last this long. The only way people can get longer lasting side effect is, if they took massive amounts of it which i dint. When i said AA, i meant alopecia areata an autoimmune condition.

cyclinglady Grand Master

There are over 300 symptoms of celiac disease. Many overlap with other disorders. The best thing is to get a celiac blood panel and, if positive, then a biopsy of the intestinal tract via endoscopy.

Here is a link to the University of Chicago's celiac website that might be helpful.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

While this does not sound like the typical onset of Celiac disease-associated neuropathy, given your history of vitamin deficiencies and IBS, it would not hurt to get tested for Celiac disease.  However, in reference to the numbness and changing sides- that sounds like it is something different.  Have you had your neck examined and have the nerves checked or an MRI of that area?  Problems with the neck, nerves, or musculoskeletal system can cause those kinds of symptoms, and can be very dangerous if left untreated, so I would ask to have someone look at your neck and associated areas as well.

 

We are not doctors or experts in this area, so please get back to a doctor ASAP to have them look further into this.  If you do get tested for Celiac disease, do know that you have to be consuming gluten for the tests to be accurate, so don't start a gluten-free diet without talking to your doctor first.

casson Newbie

i also have alopecia areata. i dont think its coming from my neck region as my pins and needles, and my loss of internal stimuli(inability to feel hungry full, full or empty bladder, eye movement, bowel movement. I think it has something to do with the parietal lobe, the only thing i could thing of is soemthing systemic, like an injury, autoimmunedisease,drug induced(dph+dxm+aceto+phenyl) is another possibility. The neck region doesnt explain pins and needles and loss of smell and taste sensations on the facial region

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    4. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    5. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,765
    • Most Online (within 30 mins)
      7,748

    Kevin Zahra
    Newest Member
    Kevin Zahra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.