Waiting On Diagnosis, But Meanwhile....

[kaseydylan]

Hi all.

 

My name is Kasey and my doctor is concerned about Celiac Disease. I've had a colonsocopy done and have some swelling in my small intestine. I have an Endoscopy scheduled in 2 weeks. Tonight and yesterday after eating, I've had severe abdominal cramping and pain. I double in pain. No position is comfortable. I took Zantac last night and was able to sleep, but tonight it's been 2 hours or more since I took Zantac and I'm still hurting. I called my GI doctor's office and got the answering service. I'm still waiting on the on-call doctor to call me back. Is there anything I can do before the diagnosis and in the mean time for the "discomfort" that google calls this abdominal pain? Thanks. I hope I can get support here because I need it.

 

Kasey 

[cyclinglady]

I am sorry that you are unwell. Keep eating gluten until all testing is complete! Did you have a celiac blood test panel? That is usually the first step before the endoscopy. Here is a list of tests:

-tTG IgA and tTG IgG

-DGP IgA and DGP IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

As far as your pain, can you take an OTC pain medicine? Perhaps a hot water bottle or heating pad?

I encourage you to do more research on

celiac disease. The University of Chicago's celiac website is a great place to start.

Welcome to the forum and let us know how it goes!

[nvsmom]

Welcome to the board.

 

I'm sorry you are having such pain.  It sounds quite extreme.  I had stomach aches after eating too but the pain usually did not last for hours unless I had a lot of bloating.  If the pain seems too out of the ordinary from what you experienced in the past, you may want to keep contacting your gastro, or even try your GP.

 

For pain, I used to take ibuprofin or tylenol to take the edge off.  Wear looser pants - when pant are tight (once the bloat starts) that doesn't help.

 

If possible, try to eat gluten only in the evenings so your whole day isn't wrecked.  If you have never been gluten-free, you can probably get by in these last two weeks with only 1/2 to 1 slice of bread per day, or the equivalent.  Don't overdo it.  At this point, you just need to maintain your intestinal damage as well as the autoimmune response (for blood tests), and I do think getting the blood tests would be a good idea.

 

Good luck. I hope it gets easier.