Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People....


Kaleab

Recommended Posts

Kaleab Newbie

Hello, 

I am a new member, I am 15 years old. Anyways, what do you do with people that don't understand? That think you do it for attention? Today in school somebody in school said something just terrible, telling me it was all for att. and that I should suck it up (other words were used) and go on with life. Thanks :-)

 

Btw, anybody get irritable for the next month or have weird stomach things happening after stopping gluten? Bc/ it has been 6 wks and I did have some funky things go on. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CathyO Rookie

I'm 60 and get the same kind of nonsense from other adults ...

Sometimes people are afraid of things they don't understand and instead of trying to understand, they act like bullies.

The first few months are hard. Adjusting your body, and adjusting your brain and how to think about food. Some withdrawal symptoms will happen, but once you're past that, you'll feel so much better.

CathyO Rookie

This site might help you come up with ways to talk to your friends.

Open Original Shared Link

Kaleab Newbie

Thanks CathyO! I see how instead of understanding they would take another route. Will definitely use the site, to talk to them!! 

gilligan Enthusiast

I have that same problem with another family member that has celiac!  I'm told all the time how I go overboard in my thinking, and there's no reason why I can't eat at restaurants as long as I don't order something like a sandwich or french toast.  

CathyO Rookie

It's hard for people to comprehend cross contamination. I've demonstrated how easy it can be.

Bowls of water lined up, labeled different things. Like "gluten-free soup" and "gluten-free sauce" and so on.

I take a small piece of gluten-free bread, and we pretend it's bread with gluten. I drop it in the pretend soup, and the bread dissolves. I ask if that soup is still gluten free ... Nope.

I take a spoon and ladle that contaminated soup into an empty bowl ... And let a bunch drip on the counter and get some in the pretend gluten-free sauce. Is that sauce gluten-free now? Nope.

I take a sponge and wipe the liquid off the counter. Is that sponge gluten free or contaminated?

Bread crumbs in a toaster. Bread bits on the butter and in the jelly.

Cross contamination is so easy to happen, even with the best intentions.

Until people see for themselves, they can't imagine it being so easy.

Kaleab Newbie

I have that same problem with another family member that has celiac!  I'm told all the time how I go overboard in my thinking, and there's no reason why I can't eat at restaurants as long as I don't order something like a sandwich or french toast. 

That's terrible & rude. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaleab Newbie

It's hard for people to comprehend cross contamination. I've demonstrated how easy it can be.

Bowls of water lined up, labeled different things. Like "gluten-free soup" and "gluten-free sauce" and so on.

I take a small piece of gluten-free bread, and we pretend it's bread with gluten. I drop it in the pretend soup, and the bread dissolves. I ask if that soup is still gluten free ... Nope.

I take a spoon and ladle that contaminated soup into an empty bowl ... And let a bunch drip on the counter and get some in the pretend gluten-free sauce. Is that sauce gluten-free now? Nope.

I take a sponge and wipe the liquid off the counter. Is that sponge gluten free or contaminated?

Bread crumbs in a toaster. Bread bits on the butter and in the jelly.

Cross contamination is so easy to happen, even with the best intentions.

Until people see for themselves, they can't imagine it being so easy.

Wow, I might try this with some people. Thanks Cathy!

CathyO Rookie

Kaleab, it could be a science project.

One person was really stubborn, insisting it wasn't that big a deal.

I asked them if I poured an ounce of gasoline in their bowl of soup, would that be something they'd want to eat.

No! It would make me sick. That's dangerous.

Same with gluten for a celiac. While I might not look sick on the outside, on the inside my intestines are being damaged and my other organs are being affected. Just like drinking a poison. It's just that gluten isn't a poison to everyone, just us lucky few.

Kaleab Newbie

"Lucky..." I wish. Thanks again!! 

CathyO Rookie

Lucky was supposed to be read in a sarcastic font.

;-)

Kaleab Newbie

Lucky was supposed to be read in a sarcastic font.

;-)

I know...haha. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.