Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Is Currently Taking Synthroid?


BrittLoves2Run

Recommended Posts

BrittLoves2Run Apprentice

My Endocrinologist does not want me on generic, and recently put me on Synthroid. I was concerned about the CC issues that Synthroid says can be possible, and tried to get Tirosint. Only problem is that it's $75 a month WITH insurance.

 

I started taking Synthroid about 2 weeks ago. Very shortly after I started getting all these strange things happening. Weird gut spasms, pain in my kidneys, pain right below my rib cage, pain in my ovaries, really bad intestinal cramping, and nausea. I did test positive for Leukocytes in my urine and told I have a UTI. I've been on antibiotics for nearly 72 hours and I'm not feeling any better. Still nauseous, and getting back/side/kidney/ovary pain.  

 

It could be a complete coincidence that this all happened RIGHT when I started the synthroid, but wondering if some of this could be glutening?

 

Anyone who is taking the BRAND NAME drug feeling OKAY?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



etbtbfs Rookie

When I investigated the gluten status of various T4 brands years ago, I discovered that Abbott would not promise thAt Synthroid is gluten-free. However King Pharmaceutical (now owned by another corporation) would guarantee that Levoxyl is gluten-free. So I have used Levoxyl ever since.

Nikki2777 Community Regular

I take Levothyroxine from Mylan with no problem.  Is that generic?

LauraTX Rising Star

I also take Mylan levothyroxine, which is a generic.  A lot of doctors will have patients take brand name to prevent them from moving from one generic to another.  With levothyroxine, the doses are so tiny, that a slight difference between brands can cause blood levels to fluctuate.  So when you take one generic brand, stick with it.  If you change brands, go get your thyroid levels checked 6 weeks later.

 

As for the doctor insisting you take brand name synthroid despite it not being verifiably gluten-free.. just firmly tell him that you cannot take that medicine as it may contain gluten, and have him write you a script that allows generic substitution.  Then find one manufacturer and stick with it.

rrmac Apprentice

I take levothyroxine from Lynette they say it's gluten-free. I'm 1 year gluten-free and my antibodies are down by half on some and normal on other tests. I'll be checking them again in the future if they don't completely go away I'll look into another thyroid medicine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,951
    • Most Online (within 30 mins)
      7,748

    Tanya177
    Newest Member
    Tanya177
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
    • Scott Adams
      This article might also be helpful, as you could have DH: https://www.celiac.com/celiac-disease/understanding-dermatitis-herpetiformis-the-skin-manifestation-of-celiac-disease-r6361/
    • trents
      I would think that as long as you keep your food on a wrapper or on a paper plate you would not be at risk for cross contamination. You may be overthinking it all which is common for those in the first year of the celiac journey. But let me ask you. Are you feeling self-conscious about having a celiac diagnosis? I notice the term "isolated" in your thread title. Do you fear being shunned? I offer this video clip for your consideration:  
    • Tanya177
      I’m worried about cross contamination, as people don’t clear up properly. I take my own lunch in a packed lunch box with my own cutlery, plate etc and wash it all at home everyday rather than using the schools communal options. There is always crumbs or food left out for us to share on tables etc. 
    • trents
      Welcome to the forum, @Tanya177! Help us understand why you don't eat with the other staff members at the present time. I'm assuming you already pack your own lunch rather than eating school cafeteria food. Surely there are other staffers who bring their own lunches. How would this be different if you did not have celiac disease?
×
×
  • Create New...