Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened And Dh Came Raging Back


RustyShackelford

Recommended Posts

RustyShackelford Newbie

Well it's been about 8 months since my DH improved to a level where I could live a normal life. It never really went completely away but it was way better than it was last year around this time. I've been gluten free since OCT of 2013 and the DH didn't really kick in until 3 months AFTER I went gluten free. I posted some of my story in the past so I won't go into it again.

 

I'm here today because I got glutened and my DH has exploded over the last couple days. I know it'll go away again and better days are coming but I wanted to check in with those who have had a "glutening" experience.

 

Please... Share... How did your reoccurance unfold and eventually end? I will also share mine as time goes on.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RustyShackelford Newbie

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

bluewhitesky Rookie

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

I'm glad you are healing quickly! 

squirmingitch Veteran

Amen to that!

  • 2 weeks later...
RustyShackelford Newbie

Still healing with no new outbreaks. Thank God.

Here are some pics of the progression, I'll post them in order from beginning of outbreak to now.

 

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

RustyShackelford Newbie

Damn that sucked. Gluten sucks.

ravenwoodglass Mentor

So glad this outbreak is over for you. Hope you never have to deal with it again. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluewhitesky Rookie

Wow, that must have been so awful for you. The final picture looks like a brand new hand! 

RustyShackelford Newbie

Well as most of you know, it only feels about 100 times worse than it looks.

squirmingitch Veteran

Yup. I know that feeling. My hubs gets it like that on his hands too -- mostly on the fingers like yours. Horrid place as you can't hide it, you can't keep anything on it because it will get washed off every time you wash your hands and washing hands just seems to irritate it further. I sure like that last photo! I breathed so much easier when I saw that one. Before that was like flashback city. (Shudders)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748

    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.