Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened And Dh Came Raging Back

RustyShackelford

Recommended Posts

RustyShackelford Newbie
RustyShackelford
Posted

Well it's been about 8 months since my DH improved to a level where I could live a normal life. It never really went completely away but it was way better than it was last year around this time. I've been gluten free since OCT of 2013 and the DH didn't really kick in until 3 months AFTER I went gluten free. I posted some of my story in the past so I won't go into it again.

 

I'm here today because I got glutened and my DH has exploded over the last couple days. I know it'll go away again and better days are coming but I wanted to check in with those who have had a "glutening" experience.

 

Please... Share... How did your reoccurance unfold and eventually end? I will also share mine as time goes on.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RustyShackelford Newbie
RustyShackelford
Posted
  • Author

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

bluewhitesky Rookie
bluewhitesky
Posted

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

I'm glad you are healing quickly! 

squirmingitch Veteran
squirmingitch
Posted

Amen to that!

  • 2 weeks later...
RustyShackelford Newbie
RustyShackelford
Posted
  • Author

Still healing with no new outbreaks. Thank God.

Here are some pics of the progression, I'll post them in order from beginning of outbreak to now.

 

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

RustyShackelford Newbie
RustyShackelford
Posted
  • Author

Damn that sucked. Gluten sucks.

ravenwoodglass Mentor
ravenwoodglass
Posted

So glad this outbreak is over for you. Hope you never have to deal with it again. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bluewhitesky Rookie
bluewhitesky
Posted

Wow, that must have been so awful for you. The final picture looks like a brand new hand! 

RustyShackelford Newbie
RustyShackelford
Posted
  • Author

Well as most of you know, it only feels about 100 times worse than it looks.

squirmingitch Veteran
squirmingitch
Posted

Yup. I know that feeling. My hubs gets it like that on his hands too -- mostly on the fingers like yours. Horrid place as you can't hide it, you can't keep anything on it because it will get washed off every time you wash your hands and washing hands just seems to irritate it further. I sure like that last photo! I breathed so much easier when I saw that one. Before that was like flashback city. (Shudders)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour ...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

      I agree with Trents' reply. In addition ... Your post does not say what you did with your child's diet after the blood test and prior to the endoscopy. Usually the Dr advises a "gluten challenge" prior to the test so that the inflammation is more pronounced and easier to see. On the other hand, if they didn't mention this, you may have reasonably restricted...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

      @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
    4. Mari
      - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
    5. trents
      - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,683
    • Most Online (within 30 mins)
      7,748
    Alaena
    Newest Member
    Alaena
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Pear Bread

      By Aretaeus Cappadocia · Posted

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      Second chance

      By Mari · Posted

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      Test interpretations

      By trents · Posted

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Test interpretations

      By knitty kitty · Posted

      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.