Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Glutened And Dh Came Raging Back

RustyShackelford

Recommended Posts

RustyShackelford Newbie
RustyShackelford
Posted

Well it's been about 8 months since my DH improved to a level where I could live a normal life. It never really went completely away but it was way better than it was last year around this time. I've been gluten free since OCT of 2013 and the DH didn't really kick in until 3 months AFTER I went gluten free. I posted some of my story in the past so I won't go into it again.

 

I'm here today because I got glutened and my DH has exploded over the last couple days. I know it'll go away again and better days are coming but I wanted to check in with those who have had a "glutening" experience.

 

Please... Share... How did your reoccurance unfold and eventually end? I will also share mine as time goes on.

 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RustyShackelford Newbie
RustyShackelford
  • Author
Posted

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

Link to comment
Share on other sites
bluewhitesky Rookie
bluewhitesky
Posted

Well I guess I'll just reply here to hopefully offer a ray of light to the next person in my shoes. On the 13th it was raging, on the 16 the fluid started to subside, and by today the 19th much of the fluid has gone and the lesions and sores are healing quickly.

 

My previous and only other DH experience acted just like this except the fluid would come back at night, over and over, for months. This time (fingers still crossed) the fluid came on hard and strong but then subsided. This outbreak was by far the most severe I ever had but it is subsiding as quickly as it came. There is still a chance it could come back in another wave and I will update here if it does.

I'm glad you are healing quickly! 

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Amen to that!

Link to comment
Share on other sites
  • 2 weeks later...
RustyShackelford Newbie
RustyShackelford
  • Author
Posted

Still healing with no new outbreaks. Thank God.

Here are some pics of the progression, I'll post them in order from beginning of outbreak to now.

 

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites
RustyShackelford Newbie
RustyShackelford
  • Author
Posted

Damn that sucked. Gluten sucks.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

So glad this outbreak is over for you. Hope you never have to deal with it again. 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bluewhitesky Rookie
bluewhitesky
Posted

Wow, that must have been so awful for you. The final picture looks like a brand new hand! 

Link to comment
Share on other sites
RustyShackelford Newbie
RustyShackelford
  • Author
Posted

Well as most of you know, it only feels about 100 times worse than it looks.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Yup. I know that feeling. My hubs gets it like that on his hands too -- mostly on the fingers like yours. Horrid place as you can't hide it, you can't keep anything on it because it will get washed off every time you wash your hands and washing hands just seems to irritate it further. I sure like that last photo! I breathed so much easier when I saw that one. Before that was like flashback city. (Shudders)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
    2. Aussienae
      - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
    3. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    4. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    5. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748
    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...