Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

17 With Celiac


Guest hockeybabe

Recommended Posts

Vyse Newbie

this thread is a bit old, but i thought id throw in my 2 cents for the heck of it.

Im currently 18, ive been gluten-free for nearly 3 years. it was rough at first, but my friends were pretty supportive, even though they forget sometimes to this day. i have had people mess with me jokingly, but going through most of my high school career without wheat has openned some peoples eyes. Maybe people in my hs didnt really pay much mind. Then again i am quiet and 6"3', so maybe i was a little scary to those that didnt get to know me. then again i never had drama with anyone either, with the whole not talking much thing.

Either way, i know how you feel. I have even sat in pizza hut numerous times just to spend time with my friends, and my friends have eaten pizza in front of me too many times to count, not maliciously of course its just that they dont understand. And i forgive them for that because im their friends and they're mine. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

You guys are very fortunate to know you have celiac disease at 17. I didn't find out until I was 36. Basically this disease caused me to waste the first 36 years of my life. High school was the worst 3 years of my life. Even at 37 there are people who will try to tempt me into eating gluten laden foods. Keep taking care of yourselves, its worth it in the long run.

Ianm

  • 1 month later...
kings-kid Newbie

I am 18 years old. I was diagnosed when I was in grade 7, but was in denial about through most of highschool, and even some now. I try and stick to the diet, but sometime I just slip up and cheat.. especially if there is Pizzs or lassania in the house.

celiac3270 Collaborator

I bet you've heard this before, but you can't do that to your body! :o Being partially gluten-free is no good--you need to be 100% gluten-free 100% of the time for your body to heal--and if you're not, there's a severely elevated chance of osteoporosis, type 1 diabetes, and cancers, as well as a severe decline in estimated life expectancy. Yea, it's a pain in the neck at first and it does require you to think about eating in a new way, but it gets easier after awhile and it's for the good of your body. Even if you don't feel anything when you eat gluten, your intestines are still being destroyed. I don't know if this will have an effect--probably won't--but at least I tried :rolleyes:

  • 3 months later...
sweetiegrl109 Newbie

hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

KaitiUSA Enthusiast
hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

<{POST_SNAPBACK}>

What you can do is just bring your own drink along. Nobody will care. I have had to bring my drinks pretty much everywhere I go and people don't even ask questions. They don't need an explanation to why you brought it along either.

However, if you are talking alcoholic beverages then its probably a good thing you can't have the drinks they have there.

You don't cheat on the diet do you? That can cause those days you are talking about of just not feeling well.

I know some people can really get to you with the comments they make as jokes...it bothered me for a while but doesn't anymore. If someone says something then you can ignore it or come back with a joke back on them.

It also used to bother me to sit with people while they ate my pre gluten-free favorite foods...now I don't even crave it so they are welcome to all the crap food they want and if its in front of me it's cool.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,341
    • Most Online (within 30 mins)
      7,748

    Eppie
    Newest Member
    Eppie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.