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Annatto

JoeB

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JoeB Apprentice
JoeB
Posted

I'm very careful with my diet and have had very few gluten problems, but I've found that when I eat ice cream that contains annatto I have a reaction that is exactly what happens when I eat gluten. I never have a problem with ice cream that doesn't contain gluten. I've had this happen with both Breyer's and Edy's (Edy's web site says the flavor I ate is gluten-free).

I've searched the archives and see only a couple of references to problems with annatto. Does anyone know for sure if this is related to celiac disease?

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bluelotus Contributor
bluelotus
Posted

Search the site index and the forbidden/safe food lists. I think that they used to mention gluten may be used in annatto processing......

Good luck with your search!

bluelotus Contributor
bluelotus
Posted

Sorry, did the search and didn't see it. Let me check some old files and get back with you.....

bluelotus Contributor
bluelotus
Posted

I apologize, I may have misspoke. The list I have here says annatto is safe for celiacs, but I swear I remember reading that gluten may be used in its processing. This would have been a year ago that I saw it..... Sorry for all the confusion, but it appears, based on what's listed now, annatto is safe. Let me know if you find any other information. I really don't think I'm going crazy, but I guess its always possible. :blink:

lovegrov Collaborator
lovegrov
Posted

Once upon a time somebody, I think it was the CSA, claimed that people with celiac should avoid annatto. This was based on nothing at all. Annatto is without question gluten-free. However, there do seem to be some people who disagree with annatto.

richard

jenvan Collaborator
jenvan
Posted

I met with a celiac nurse this week who mentioned steering clear of annatto. She mentioned it can irritate Celiacs who are still healing... That's all I can think of on it....

mommida Enthusiast
mommida
Posted

When I was on the gluten free diet for the first year, I was reacting to annatto! I have since been able to tolerate it.

Laura

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JoeB Apprentice
JoeB
Posted
  • Author

Thanks for replies. I've only been gluten-free for less than a year, so I hope you're right about getting less sensitive to annatto. I did see some previous posts in the archives and it certainly looks like this isn't a widespread problem among celiacs. I guess I'll just stay away from it for a while and then try it again in a year or so.

flagbabyds Collaborator
flagbabyds
Posted

When I was first diagnosed they told me to stop annatto before I was 6 and then be able to have it until I was 60, it is something about the way that your body can process it, especially when you are still healing, try staying off it for a year or two, and then when you are completely healed, try going back slowly.

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      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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