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Could It Be Gluten-withdrawl?


Guest DanceswithWolves

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jerseyangel Proficient

I know that I'm not the first one to suggest this, but the ole "going back to the basics" would help you get a handle on what is causing your reactions. Potatoes are a good start. Maybe add some fresh meat, cooked simply (you need your protein!!). Do you like rice? Cooked vegetables--start with easy to digest ones like green beans, squash, etc. At the beginning maybe leave out the corn and soy products--its not uncommon to react to those. I use no dairy at all. You could try a peroid without that, too and see if it makes a difference. It sounds like a lot to give up, but really, there are a lot of nice filling meals you can make with the basic foods and gradually you will add things back to see how it goes. Potato chips make a good snack at work as well as the cashews, walnuts are also good and a great source of Omege 3 fat that is good for you. No more pretzels--you don't need to eat things that will spoil all of your efforts in the right direction. Keep moving forward, even if slowly, because you are worth it and any time you need a hand, we'll be here. :)


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darkangel Rookie
What about milk and dairy products? Do most of you serious Celiacs cut out dairy completley? 

<{POST_SNAPBACK}>

I'm finding the dairy protein casein has probably done me as much or more harm than gluten. I've improved dramatically from avoiding all dairy except real butter, which is mostly fat.

You'll never really know unless you consistently avoid gluten and/or casein. It takes willpower, discipline and preplanning.

This may veer a little off topic, but I feel it's necessary to say: we're all unique and we all have complicated lists of seemingly unrelated symptoms. Gluten may or may not be the source of each person's problems. Or it could be gluten and casein. Or it could be gluten and a combination of other common allergens... eggs, tree nuts, peanuts, soy, etc.

Even though this is a gluten-free forum, we don't want to see every newbie here as a nail, simply because we have a hammer. Those of us who are "undiagnosed" are desperate for quick answers, but - sadly - it's been my experience we must all do our own homework, research and dietary trial and error.

RiceGuy Collaborator
With me, I guess potatoes are really the one thing I know that will fill me. I'll actually feel full.

Good! Like I said, I make the instant ones often - with water, so there's no dairy either. That can help you keep to safe foods while you pinpoint all the no-no's. Sprinkle some sprouts on top if you like. As has already been stated, you need the protein too. When I first had to cut out foods, I was going bananas trying to fill out meals. But it got easier once I got my brain wrapped around new food ideas. We get so used to certain things that we don't see the multitude of possibilities. That's one thing this forum is helping me with too :)

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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