Help, Daughter's Ttg Is 214.3 After Going Gluten-Free 10 Months Ago?!

[Monica V]

Our 7 yr old daughter was diagnosed with Celiac last August.. TTG was 135, had a Biopsy in October to confirm Celiac. Started Gluten Free diet after Biopsy, did all the recommended instructions given...with guidance from a close friend who has Celiac, as well as one of her twins. She had follow up blood work last week of her TTG only. Well I received a call today that her TTG is now 214.3!! Any one else had this issue of elevated TTG after diagnosis? Could something else be going on? Any help/ideas?? She will meet with her Pediatric Gastro Dr in 2 weeks.

[Gemini]

Have her symptoms subsided with the gluten-free diet?  If so, then she probably isn't getting gluten in her diet....unless she was asymptomatic to begin with.

 

When rechecking antibodies after starting the gluten-free diet, docs need to do both the DGP and tTg.  The tTg only checks for tissue damage and not dietary compliance.  This is a huge mistake they make a lot and people end up being told they are screwing up their diet when they may be tripping for another autoimmune disease.  I would insist on the DGP to see what that is and also have them do additional testing for other AI diseases that occur with frequency along with Celiac.  Hashi's thyroid disease, RA, Sjogren's Syndrome and Type 1 diabetes, to name some of them.  These are all blood work tests so not that bad to undergo.

 

Good luck!

[RMJ]

Were both tests run at the same lab? Do they have the same ranges for normal vs positive? I notice that one includes a number after the decimal point and one doesn't - that would be unusual if run by the same method.

[Monica V]

Her symptoms have subsided since going gluten-free. I left a message with her Dr's office to ask the questions you left me with. I really appreciate you taking the time to help! I'm still learning as we 10 months into this..

[cyclinglady]

Ditto what Gemini stated!