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atibbs

By atibbs
in Dermatitis Herpetiformis

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atibbs Rookie
atibbs
Posted

Anyone out there from the Portland/Vancouver area?,

If so any suggestions on Doctors, Im getting sick & tired of

the so called doctors I go to, that tell me it's probably some

deodorant, shampoo, laundry detergent causing my rash......... :angry:

I found out about gluten intolerance all on my own doing some research, but I really don't have a definate answer which I want! :unsure:

so if anyone knows what else I can do, I'd be very happy :D

I'am the only one in my family who has these symptons, so I don't know!!!

I'm just really frustrated :angry:

  • 4 weeks later...
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LauraZ Rookie
LauraZ
Posted

Have you had any success going gluten-free? I had no luck with conventional doctors either -- told me it was just a garden-variety dermatitis and to put betamethasone on my scalp (red and oozy), and topical steroids around my eyes (which were crusty and swelling) and on my neck (which was beet red). I had no idea it was diet-related until a friend of mine recommended going to a naturopath. The naturopath gave me the ELISA blood test that showed high reactions to wheat gluten and gliadin. The celiac test was negative, but I went gluten-free anyway and sure enough, everything cleared up. If I accidentally get some gluten (did you know that imitation crab has wheat flour in it??) it comes back, but I just stick with being gluten-free and it goes away again.

The best thing about going gluten-free to resolve these problems is that you're not trying an experimental drug so there is no danger. You have nothing to lose and everything to gain by trying it.

Good luck!

tarnalberry Community Regular
tarnalberry
Posted
Anyone out there from the Portland/Vancouver area?,

If so any suggestions on Doctors, Im getting sick & tired of

the so called doctors I go to, that tell me it's probably some

deodorant, shampoo, laundry detergent causing my rash......... :angry:

I found out about gluten intolerance all on my own doing some research, but I really don't have a definate answer which I want! :unsure:

so if anyone knows what else I can do, I'd be very happy :D

I'am the only one in my family who has these symptons, so I don't know!!!

I'm just really frustrated :angry:

If you think it's DH, call around to dermatologists and ask them if they have deal with any celiac patients that they've done skin biopsies on. No reason not to call around first; you're shopping for a service.

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