Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help

AaronsWife

Recommended Posts

AaronsWife Newbie
AaronsWife
Posted

My husband is in SO MUCH pain constantly. We just started a gluten free diet today but even when he eats something as simple as applesauce, he's in pain and running for the bathroom. I can't stand to see him this way. What do we do? What direction do we go? When will the pain let up after going gluten free?

 

PS - We just lost insurance due to a job change so we can't even get further advice from doctor right now. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Does he have Celiac disease? If not, being gluten-free might not make any difference. If he has Celiac, it can take at least a few weeks to feel noticeably better and even a few years to become completely " normal".

AaronsWife Newbie
AaronsWife
Posted
  • Author

After bloodwork and ruling out so many OTHER things, the doctor highly suggested Celiac but that is as far as we got before insurance cancelled. He has almost all signs/symptoms including the rash and some things are easier on his gut than others, like rice. He tolerates rice better than bread. We're in a trial and error phase right now I guess.

cyclinglady Grand Master
cyclinglady
Posted

If he is going to go gluten free, then I would advise looking at our Newbie 101 thread found under "Coping":

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It discusses cross contamination (yes, you can gluten your hubby by kissing him after consuming a piece of bread or whatever contains gluten) and hidden sources of gluten like medication, supplements, etc.

Time to heal? It can take months to years to heal. Everyone is different depending on damage and the learning curve is steep for adhering to the gluten-free diet. If he has DH (celiac rash) it can take a very long time for antibodies to leave the skin).

Check out the rest of the forum and start learning and welcome!

I hope he feels better soon!

LookingforAnswers15 Enthusiast
LookingforAnswers15
Posted

Hi, I really do not have a medical advice to offer. However, since your husband cannot go to a doctor now and he does have to eat, concentrate on plain food. Since he can handle rice, just plain rice (unsalted) might help him. They usually give it to patients after surgeries, I think. Also, I might sound silly since I already told someone else to eat bananas, but I would recommend that he eats that instead of applesauce. I just remembered that even when I was sick and no one even thought of celiac (although looking back there were typical celiac symptoms), I only could handle eating bananas. I know that applesauce is sweet but at the same time I think apples are considered to be good for losing weight and can be sometimes somewhat sour, so I would avoid that. Also avoid sweets, processed food, and spices. Good luck!

squirmingitch Veteran
squirmingitch
Posted

Bone broth. Made this way:

Open Original Shared Link

 

Many, many people have found this is one of the only things they can get down & will stay. It's rich with nutrients and nourishment. Fresh pears but you might want to cook them in some water to make it easier for him to digest but don't try the canned ones as they will be full of sugar.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748
    tiffanygosci
    Newest Member
    tiffanygosci
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      Does anyone here also have Afib

      By tiffanygosci · Posted

      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.