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How Do You Limit Your Iodine?

spunky

By spunky
in Dermatitis Herpetiformis

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spunky Contributor
spunky
Posted

I've been trying to limit iodine and I can't seem to find out exactly where we get iodine, besides iodized salt. Does anybody here know about where we would get hidden iodine in our diet? Not dealing with dh, but my daughter was diagnosed with both Hashimotos Dusase and Graves Disease last spring. She is in her mid-30s and has been both gluten free and diary free for many years. We are looking for better answers in dealing with these conditions than what the doctors are doing, and decided it might be worth trying low iodine, but from looking this up on the net, I'm not sure where we get excess iodine, I read that countries that iodize their salt soon get hit with cases of autoimmune thyroid diseases...so I'm thinking cut out any excess and see if we can get her under better control. Just having trouble knowing where we are getting the iodine from if we don't use iodized salt.

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notme Experienced
notme
Posted

someone told me (so, this is not presented as a scientific fact) (it might have been on this forum) that ibuprofen contains iodine.  so, in the beginning, i was avoiding it until my skin cleared up.  now, i don't have the headaches i used to have or that lovely joint pain, so i probably take 2 per year.  and then my scalp will break out, so i figure it is that...?   or, whatever is making me have a headache bad enough to take a pain reliever makes my scalp break out, lolz...  

squirmingitch Veteran
squirmingitch
Posted

Open Original Shared Link

When I was doing low iodine I researched like mad. These are the other things I found that had higher iodine content:

The skin of potatoes

Greens - ie: mustard, collard, turnip

asparagus

spinach

the skin of peanuts

raisins

carrageenan or it's other names -- they are all sea algae/seaweed/kelp

beans sich as kidney, pinto

Those are all I recall right now besides what Is listed on thyca.org

The thing is that there is iodine in the soil & plants take up a certain amount of iodine -- different plants, different uptake rates. AND different areas of the country, even different soils contain differing amounts of iodine. My soil may contain a good deal more than my next door neighbors soil.

 

 

 

knitty kitty Grand Master
knitty kitty
Posted

I hope this helps. It says thiamin supplements may help. 

 

Open Original Shared Link

 

I don't think doctors think about vitamin deficiencies. 

spunky Contributor
spunky
Posted
  • Author

Thanks, squirming and knitty...both look very helpful!

squirmingitch Veteran
squirmingitch
Posted

You're welcome.

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      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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