Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical Negligence?


maverickuk

Recommended Posts

maverickuk Newbie

I'm based in the UK and have just received a positive TTG IGA and a positive EMA IGA. 

I've been sick for 23 years in total, in which time I've been overlooked dramatically. 5 years ago, after much research, I felt there was enough symptoms to suggest celiacs, so I went out and purchased the Biocard home blood test, which was positive. So I did several more and all were positive. 

I went to my GP, who refused to test me on the grounds that he was sure it wasn't celiacs and he didn't believe in the home test-kits. 

Then 3 years ago, I requested again, via a different doctor, who laughed, and said that she is 100% certain I don't have celiacs, because I am not underweight and ALL celiacs are underweight. 

Just under 2 years ago, I had to quit my 6 figure salary job, because I was so exhausted. I spent 12 months out of work, in which time I got myself in to debt. 

I eventually had a private test that revealed low cortisol and as a result I started taking Hydrocortisone. This give me a big boost and allowed me to get my career back on track, but I am still exhausted, it just means I can now function. 

Anyway, 23 years is a long time and maybe more specifically, the past 5 years of being denied a test, for a disease that I almost certainly have. 

Is this medical negligence? It sure feels like it to me? 

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacBurger Newbie

 Unfortunately the non-medical public holds doctors in such high esteem that something like this could never be proven as medical malpractice. The ignorance of the typical doctor is overlooked pretty much all the time. I know this for a fact because pretty much every doctor I've spoken to has gotten his facts wrong in at least some  capacity.

The fact that they opt to laugh us out of their offices, call us hypochondriacs, or revert to straight out insults rather than lift a finger to run a blood test, is astounding. The arrogance and the damage they do to public health is difficult to measure.  

Just educate yourself on your own health.  Do your own research.  And use doctors for the only thing they're good for these days:   Fixing broken bones and writing prescriptions.  You are your own health advocate. No doctor out there is going to take care of you, as well as you.  And no doctor out there is going to care about your situation as much as you do. You will invest the time learning. They won't. As a result you will be more educated on several topics, than even your doctor with the MD behind his name is.  

 

nvsmom Community Regular

Unfortunately, your story is pretty common.  I think being told "it's all in your head" should be a symptom of celiac disease - it would be a popular one.

I first saw the doctor about my "tummy aches" when I was 8 or so. I remember being told that I was just one of those people who gets a stomacah ache ater she eats, and I should have a glass of milk with every meal.  Celiac can cause lactose intolerance so that never did help either.  :rolleyes: I figured out my celiac disease, did the biocard test, and only went to the doctor to confirm it, 30 odd years later.

I'm afraid I have to agree that many doctors are only good for acute medical emergencies and their prescription pad.  For that, I need my doctor. There are some good doctors out there, I've just never had one.  LOL

I don't know if that is medical negligence.  It elt like it to me too, but people dont sue doctors up here (canada) unless the doctor has done something very wrong to them, and even then it is unusual.  I doubt missed celiac would be considered negligence up here.  Just guessing.

  • 4 months later...
lauriebuckhout Newbie

I want to sue my son's doctor for negligence. Any ideas?

kareng Grand Master
4 minutes ago, lauriebuckhout said:

I want to sue my son's doctor for negligence. Any ideas?

Consult a malpractice attorney?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    4. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    5. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,758
    • Most Online (within 30 mins)
      7,748

    danetta
    Newest Member
    danetta
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.