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Celiac until 6yr old...do I still have it

Notonp

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Notonp Newbie
Notonp
Posted

I'm now 42 and and struggling with digestion for last. 5 years..ears are ringing..mouth feels tingly and makes me get  twitches and stop breathing when I fall asleep..symptoms go up and down constantly..along with the sleeping..can't cope with it

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RebekahLynn Newbie
RebekahLynn
Posted

Hi :-) a little confused by your subject "until six years old"

Were you told you had grown out of it? If so, you were misinformed by your doctor. Celiac is a lifelong illness that requires lifetime strict avoidance of gluten. It cannot be outgrown. Does this answer your question? 

kareng Grand Master
kareng
Posted

It's true that you don't outgrow or get cured from Celiac. It is a life long disease.  But.......

 

35 years ago, they may have not diagnosed it correctly.  You may not be able to get your medical records.  I am assuming you have been eating gluten for years and years.  I would get tested for Celiac.  If you actually had it at 6, it should show up in your blood work.

 

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Notonp Newbie
Notonp
Posted
  • Author

Hi..yes I can remember the day I was told I could eat toast..I eat pretty well but have never concentrated on gluten free..fruit veges and some meat basically..eat from the ground ,from the sea, from a tree..easy..haha.

 

cyclinglady Grand Master
cyclinglady
Posted

Seriously, if you have been consuming gluten for the past few years, get retested as Karen suggested.  

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