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- knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Airborne Gluten?
Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release... -
- Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications3Guinness, can you drink it?
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- Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Recovery from gluten challenge
I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ... -
- annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Airborne Gluten?
Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum. Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains...- 1
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- trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Rectal pain
I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
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By knitty kitty · Posted
Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes. High histamine levels do cause anxiety and migraines. The muscle spasms can be caused by high histamine, too. The digestive system may not manifest symptoms without a higher level of gluten exposure. Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine. Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO. DAO supplements are available over the counter. Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released. Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation. Thiamine helps mast cells refrain from releasing their histamine. I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier. High histamine in the brain can cause the muscle spasms, anxiety and migraines. Vitamin C really helps with clearing histamine, too. The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese. Some people develop lactose intolerance. Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten. An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it. Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten. You're doing great! A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!! -
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I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice!
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By annamarie6655 · Posted
Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum. Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains. HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in. The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it. When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time. My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can. is there anyone else who has experienced this, or gets similar neurological symptoms? -
I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
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