Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

weight loss / muscle recovery


angeles99

Recommended Posts

angeles99 Rookie

Hi all,

 

Have been gluten free for 2 weeks now after being diagnosed via positive bloods and biopsy.

Wanted to ask how long roughly before my body will be able to start absorbing nutrients again as I've lost so much weight and muscle over the past couple of years. I'm no longer able to workout since December 2013 due to a neuropathic pain condition and extreme breathing problems (I believe these are unrelated to the celiac disease). I desperately need to put back on some weight and muscle. Once my gut heals should I be able to put on muscle as normal in the past? Is the inability to put on muscle caused by not being able to absorb nutrients? I also feel that my growth was stunted due to having undiagnosed celiac disease. Should mention I'm a 22 year old male

 

Many thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nicki Raeleen Rookie

Im 19 and i was diagnosed about 4 years ago. I didn't have to much damage, but i would give it a 6 months and if there is no improvement go back to your doctor. Something i found really comforting was making small goals.

What i would suggest is to go to the store a buy a scale; track yourself. Ensures are one thing i loved what i was recovering. They come in different flavors and are great to take to work/ school, just remember to bring some gum because they can make your breath smell!! :lol: Don't rush your recovery. Everyone takes a different amount of time. 

I would start making little goals that are challenging. One thing that became really hard for me was walking up and down my stairs at home without stopping ( I live in a 3 story house), witch was very upsetting because i played 3 sport. I wasn't able to get back to my full athletic potential for about a year. I was then able to hold a solid weight. 

If you are truly worried about the neuropathic pain and breathing problems, go to a doctor. Don't walk out until you have a good answer and you understand what is going on. NEVER be afraid to ask questions, even if you think they are stupid. It took me more then 8 months to be diagnosed with celiac, and it was because i didn't do my researcher and i didn't ask questions. 

cyclinglady Grand Master

Give yourself months to a year!  Nikki gave you excellent advice!  Be sure to talk to your doctor about your breathing problems.  Has anemia been ruled out?  

 

angeles99 Rookie

Thank you both for your answers.

 

@Nicki Raeleen Good to know after a year you are able to maintain a solid weight. I have been going to every kind of doctor since December 2013 searching for answers regarding my pain and breathing. It all came up after a nasal surgery... Celiac was just something I randomly brought up to my GP because of my weight/muscle loss and gut issues (to be honest they were the least of my problems). Sure enough I had celiac though... Its frustrating though because I have to be the one to bring something up to my doc, if I didn't stumble across an article online I would have never known to ask for the tests. Why can't they be trying to help look for things, obviously I didn't go to medical school so how am I supposed to know whats going on?? I guess we're left to inform ourselves at the risk of sounding crazy. Sorry just venting....

 

@cyclinglady Don't know if I have been tested for anaemia. What other tests should I have regarding the muscle / weight loss. Proteins etc? Anything I should track over the year?


Thanks again.

cyclinglady Grand Master

Always, always get copies of your lab results!  Check your hemoglobin and ferritin (iron stores).  When I was severely anemic I could not catch my breath.  You could ask for other vitamin and mineral levels too, so that you can supplement (gluten-free of course).  Mostly you need time.........to heal.  

 

 

cap6 Enthusiast

There is no one answer to this question for sure.  Time.  All I can say is time.  And, as I've said before, the older you are when diagnosed and the longer you have been sick, the longer the recovery time. 

I am five years since diagnosed.  In the beginning I was no longer able to open a wine bottle. :(  My point being, there was no longer any strength in my hands. It took me about three years to recover my strength, heal my gut, learn how to eat clean (only) foods.  But, that said, everyone is so very different.  You may make larger, faster strides than someone else.  I was 58 when diagnosed and very sick.  Age (a huge factor), length of illness all took a toll and hampered the recovery time.   Age alone can slow one down.  Add an illness and recovery drags on. 

You are young and if you carefully follow the diet (life style) you should see improvement.  Remember, your gut is like a raw sore.  It needs time to heal.  Youth is on your side.  You will start to absorb nutrients as you heal and will buff up again!

 

angeles99 Rookie

@cap6 thank you! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,083
    • Most Online (within 30 mins)
      7,748

    Juane
    Newest Member
    Juane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.