Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

weight loss / muscle recovery


angeles99

Recommended Posts

angeles99 Rookie

Hi all,

 

Have been gluten free for 2 weeks now after being diagnosed via positive bloods and biopsy.

Wanted to ask how long roughly before my body will be able to start absorbing nutrients again as I've lost so much weight and muscle over the past couple of years. I'm no longer able to workout since December 2013 due to a neuropathic pain condition and extreme breathing problems (I believe these are unrelated to the celiac disease). I desperately need to put back on some weight and muscle. Once my gut heals should I be able to put on muscle as normal in the past? Is the inability to put on muscle caused by not being able to absorb nutrients? I also feel that my growth was stunted due to having undiagnosed celiac disease. Should mention I'm a 22 year old male

 

Many thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nicki Raeleen Rookie

Im 19 and i was diagnosed about 4 years ago. I didn't have to much damage, but i would give it a 6 months and if there is no improvement go back to your doctor. Something i found really comforting was making small goals.

What i would suggest is to go to the store a buy a scale; track yourself. Ensures are one thing i loved what i was recovering. They come in different flavors and are great to take to work/ school, just remember to bring some gum because they can make your breath smell!! :lol: Don't rush your recovery. Everyone takes a different amount of time. 

I would start making little goals that are challenging. One thing that became really hard for me was walking up and down my stairs at home without stopping ( I live in a 3 story house), witch was very upsetting because i played 3 sport. I wasn't able to get back to my full athletic potential for about a year. I was then able to hold a solid weight. 

If you are truly worried about the neuropathic pain and breathing problems, go to a doctor. Don't walk out until you have a good answer and you understand what is going on. NEVER be afraid to ask questions, even if you think they are stupid. It took me more then 8 months to be diagnosed with celiac, and it was because i didn't do my researcher and i didn't ask questions. 

cyclinglady Grand Master

Give yourself months to a year!  Nikki gave you excellent advice!  Be sure to talk to your doctor about your breathing problems.  Has anemia been ruled out?  

 

angeles99 Rookie

Thank you both for your answers.

 

@Nicki Raeleen Good to know after a year you are able to maintain a solid weight. I have been going to every kind of doctor since December 2013 searching for answers regarding my pain and breathing. It all came up after a nasal surgery... Celiac was just something I randomly brought up to my GP because of my weight/muscle loss and gut issues (to be honest they were the least of my problems). Sure enough I had celiac though... Its frustrating though because I have to be the one to bring something up to my doc, if I didn't stumble across an article online I would have never known to ask for the tests. Why can't they be trying to help look for things, obviously I didn't go to medical school so how am I supposed to know whats going on?? I guess we're left to inform ourselves at the risk of sounding crazy. Sorry just venting....

 

@cyclinglady Don't know if I have been tested for anaemia. What other tests should I have regarding the muscle / weight loss. Proteins etc? Anything I should track over the year?


Thanks again.

cyclinglady Grand Master

Always, always get copies of your lab results!  Check your hemoglobin and ferritin (iron stores).  When I was severely anemic I could not catch my breath.  You could ask for other vitamin and mineral levels too, so that you can supplement (gluten-free of course).  Mostly you need time.........to heal.  

 

 

cap6 Enthusiast

There is no one answer to this question for sure.  Time.  All I can say is time.  And, as I've said before, the older you are when diagnosed and the longer you have been sick, the longer the recovery time. 

I am five years since diagnosed.  In the beginning I was no longer able to open a wine bottle. :(  My point being, there was no longer any strength in my hands. It took me about three years to recover my strength, heal my gut, learn how to eat clean (only) foods.  But, that said, everyone is so very different.  You may make larger, faster strides than someone else.  I was 58 when diagnosed and very sick.  Age (a huge factor), length of illness all took a toll and hampered the recovery time.   Age alone can slow one down.  Add an illness and recovery drags on. 

You are young and if you carefully follow the diet (life style) you should see improvement.  Remember, your gut is like a raw sore.  It needs time to heal.  Youth is on your side.  You will start to absorb nutrients as you heal and will buff up again!

 

angeles99 Rookie

@cap6 thank you! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.