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Newbie to gluten-free diet

Bread+Butterfly

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Bread+Butterfly Newbie
Bread+Butterfly
Posted

Hello! 

I am newly diagnosed with Celiac and I am trying to navigate the gluten free diet. I have been gluten free for 11 days and counting! I feel run down, like I  am getting a cold or my allergies are acting up! Has anyone else experienced this while going gluten free for the first time?

Thanks! 

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bartfull Rising Star
bartfull
Posted

Yes! What you are going through is gluten withdrawal, a real, physical withdrawal. Headaches, mood swings, ravenous hunger, and a general feeling that something is wrong, are common. It usually lasts for two to four weeks. Then you will start feeling better.

So welcome to the board! Do be sure to go to the Newbie 101 thread pinned to the top of the coping section. It'll help you to manage the diet and avoid cross-contamination. Then come on back and ask questions. We are here to help. :)

Bread+Butterfly Newbie
Bread+Butterfly
Posted
  • Author
On November 12, 2015 at 2:08:09 PM, bartfull said:

Yes! What you are going through is gluten withdrawal, a real, physical withdrawal. Headaches, mood swings, ravenous hunger, and a general feeling that something is wrong, are common. It usually lasts for two to four weeks. Then you will start feeling better.

So welcome to the board! Do be sure to go to the Newbie 101 thread pinned to the top of the coping section. It'll help you to manage the diet and avoid cross-contamination. Then come on back and ask questions. We are here to help. :)

Thank you for the reassurance!:)

Erin1712 Newbie
Erin1712
Posted

I am new also. At the end of day 5 here even though I was diagnosed just over 2 weeks ago. This site has a bunch of info and a site called www.glutedude.com does to. It can be so overwhelming but I am trying to get the hang of it. I also get gluten withdrawal. Sudden hits of hunger that I cannot fill. I may fill these voids with a snack but I do what I can to get through it. I thankfully don't get the flu type symptoms but I do get headaches sometimes which can be bad. I can't wait to be healthy! 

Shrey Newbie
Shrey
Posted

Hi......can anyone help to tell me how do I distinguish my symptoms before and after going gluten free.....just been 4 days gluten free and still having digestive issues!!

Rener1961 Newbie
Rener1961
Posted

Unfortunately, it can take a long time for the effects of gluten to leave our systems. DO Not get discouraged.  It is worth your health to eliminate the things poisoning your system. You will start feeling better.  Another problem is there are so many hidden sources of gluten, you may not have truly eliminated all out of your diet Good luck!

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, Shrey said:

Hi......can anyone help to tell me how do I distinguish my symptoms before and after going gluten free.....just been 4 days gluten free and still having digestive issues!!

I felt some improvement after being gluten-free for six weeks.  But all my symptoms did not resolve until I was gluten free for about a year.  Hang in there.  A lot of patience is needed.   Remember celiac disease is an autoimmune disorder and it takes a while for the body to stop attacking itself.  Read our Newbie 101 thread under ther "Coping" section of this forum.  It may help you speed up the healing process.  ?

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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