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Newbie to gluten-free diet

Bread+Butterfly

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Bread+Butterfly Newbie
Bread+Butterfly
Posted

Hello! 

I am newly diagnosed with Celiac and I am trying to navigate the gluten free diet. I have been gluten free for 11 days and counting! I feel run down, like I  am getting a cold or my allergies are acting up! Has anyone else experienced this while going gluten free for the first time?

Thanks! 

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bartfull Rising Star
bartfull
Posted

Yes! What you are going through is gluten withdrawal, a real, physical withdrawal. Headaches, mood swings, ravenous hunger, and a general feeling that something is wrong, are common. It usually lasts for two to four weeks. Then you will start feeling better.

So welcome to the board! Do be sure to go to the Newbie 101 thread pinned to the top of the coping section. It'll help you to manage the diet and avoid cross-contamination. Then come on back and ask questions. We are here to help. :)

Bread+Butterfly Newbie
Bread+Butterfly
Posted
  • Author
On November 12, 2015 at 2:08:09 PM, bartfull said:

Yes! What you are going through is gluten withdrawal, a real, physical withdrawal. Headaches, mood swings, ravenous hunger, and a general feeling that something is wrong, are common. It usually lasts for two to four weeks. Then you will start feeling better.

So welcome to the board! Do be sure to go to the Newbie 101 thread pinned to the top of the coping section. It'll help you to manage the diet and avoid cross-contamination. Then come on back and ask questions. We are here to help. :)

Thank you for the reassurance!:)

Erin1712 Newbie
Erin1712
Posted

I am new also. At the end of day 5 here even though I was diagnosed just over 2 weeks ago. This site has a bunch of info and a site called www.glutedude.com does to. It can be so overwhelming but I am trying to get the hang of it. I also get gluten withdrawal. Sudden hits of hunger that I cannot fill. I may fill these voids with a snack but I do what I can to get through it. I thankfully don't get the flu type symptoms but I do get headaches sometimes which can be bad. I can't wait to be healthy! 

Shrey Newbie
Shrey
Posted

Hi......can anyone help to tell me how do I distinguish my symptoms before and after going gluten free.....just been 4 days gluten free and still having digestive issues!!

Rener1961 Newbie
Rener1961
Posted

Unfortunately, it can take a long time for the effects of gluten to leave our systems. DO Not get discouraged.  It is worth your health to eliminate the things poisoning your system. You will start feeling better.  Another problem is there are so many hidden sources of gluten, you may not have truly eliminated all out of your diet Good luck!

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, Shrey said:

Hi......can anyone help to tell me how do I distinguish my symptoms before and after going gluten free.....just been 4 days gluten free and still having digestive issues!!

I felt some improvement after being gluten-free for six weeks.  But all my symptoms did not resolve until I was gluten free for about a year.  Hang in there.  A lot of patience is needed.   Remember celiac disease is an autoimmune disorder and it takes a while for the body to stop attacking itself.  Read our Newbie 101 thread under ther "Coping" section of this forum.  It may help you speed up the healing process.  ?

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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