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Test Results - 8 year old possible celiac? Anyone diagnosed with these results

Metoo

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Metoo Enthusiast
Metoo
Posted

I am gluten-free - because I had a rash I couldn't get rid of.  I am 5 years gluten-free now.  My son has had skin issues that are only getting worse.  We have been told that they are simply excema....which is what I was told my rash was. 

He has had 2 sets of blood panels done now, several months apart. 

His panel is completely normal (and he makes a normal amount of IgA)...except his antigliadin antibodies IgA are High.

IgA serum - 180 (range was 33-258)
Tissue Transglutaminase Ab IgA - 0.3 (range less than 7 neg, 7-10 weak positive)
Tissue Transglutaminase Ab IgG - less than 0.6 (range less than 7 neg, 7-10 weak positive)
Anti-Gliadin Antibodies IgA- 22 (range 0-10)
Anti-Gliadin Antibodies IgG- less than 0.4 (range 0-10)

Endoymsial Antibodies, Serum - Negative.

We are being refered to a Pediatric GI doctor, but I am unsure if doing a scope is even going to be worth it since he only has the one value being high. 

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cyclinglady Grand Master
cyclinglady
Posted

One positive.  One.  That is all you need on the blood panel.  I should know.  I personally had just one positive on the DPG IGA too and the rest were all negative.  Yet biopsies revealed a Marsh Stage IIIB a which is moderate to severe intestinal villi damage.  Intestinal biopsies via endoscopy is usually the next step.  Or get a biopsy of the rash BUT there is a special way to obtain that biopsy, so the dermatologist HAS to be celiac knowledgeable!  Make sure four to six biopsies are taken from the intestine as the small intestine is huge and it can be easy to miss damaged areas.  

By the way, my follow-up blood tests have been the same.  Only one, the DPG, is positive when I have been exposed to gluten.  celiac disease can be difficult to catch.  Doctors are hoping that at least one of the celiac disease tests will work.

he is lucky that he will not have to suffer, like you did!  Those with DH (not me) can and do struggle to get a diagnosis, but you already know that!  ?

Welcome to the forum.   Ask away!

 

Nolev Newbie
Nolev
Posted

Open Original Shared Link

  I only was positive for one of the blood tests in the panel (in my case anti-TTG IgG) and I definitely have celiac. My understanding is that the whole point of the celiac profile is that it tests in different ways and captures different positives and this is why it is better than just a single blood test. My doctor would definitely assume you have celiac and perform an endoscopy to confirm. The Mayo clinic has a great celiac diagnosis algorithms chart. You will see it says if any ONE test is positive proceed to endoscopy. (Btw I have DH, no gastro issues and had no villi damage but had IELs and negative skin biopsies, but on the single blood test and high IELs I was diagnosed celiac/DH)

Metoo Enthusiast
Metoo
Posted
  • Author
8 minutes ago, cyclinglady said:

One positive.  One.  That is all you need on the blood panel.  I should know.  I personally had just one positive on the DPG IGA too and the rest were all negative.  Yet biopsies revealed a Marsh Stage IIIB a which is moderate to severe intestinal villi damage.  Intestinal biopsies via endoscopy is usually the next step.  Or get a biopsy of the rash BUT there is a special way to obtain that biopsy, so the dermatologist HAS to be celiac knowledgeable!  Make sure four to six biopsies are taken from the intestine as the small intestine is huge and it can be easy to miss damaged areas.  

By the way, my follow-up blood tests have been the same.  Only one, the DPG, is positive when I have been exposed to gluten.  celiac disease can be difficult to catch.  Doctors are hoping that at least one of the celiac disease tests will work.

he is lucky that he will not have to suffer, like you did!  Those with DH (not me) can and do struggle to get a diagnosis, but you already know that!  ?

Welcome to the forum.   Ask away!

 

Thank you!  This is basically what I was wondering if you could NOT have any of the "anti" self antibody blood tests just hvae the "anti" gluten antibodies and still test positive in a scope! 

southpaw13 Newbie
southpaw13
Posted

My daughter (at 7) had a rash that wouldn't go away on her legs. That was her only symptom. The derm and ped both called it eczema. Her pediatrician thought I was mildly crazy to ask for the celiac blood panel on her based on a rash, but it came back positive. Unlike with your kid, she was positive on all of them, about 10X above the normal range, but even so, the ped GI was skeptical that she would get a pos bx. Based on vague family history, the GI still felt it would be worthwhile to still do the bx, and it was diagnostic for celiac. I remember being unsure if we should do the scope at the time, but in hindsight, I am glad that we went through with it.

This is my long way of saying that I think the scope would be worthwhile, even with only one blood test positive. Good luck!

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