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new symptoms, pleasevread and advise

gypsyl

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gypsyl Newbie
gypsyl
Posted

A little background- Almost 3 years ago I contracted Fifth Disease (childhood rash disease like measles, I work in elementary) which presents in adults with horrible joint pain. Since then, I have had recurring joint pain lasting from a week to a month with seemingly no cause. Sometimes it would occur just before I was sick with a cold or something minor, as well. As far as I could recollect, this was the beginning of my joint pain. However, recently my doctor looked back in my records and she states I did complain about joint pain before Fifth disease. This joint pain is everywhere, but worse in my extremities and also worse in my left arm. 

It always went away and I had no other recurring symptoms. That is, until this past August. It started like normal. Joint pain all over, but after 3 weeks it was just getting worse. Then I began also have muscle pain, when I moved and also just when I was touched. Then the nerve pain started. Pins and needles and a painful numb type feeling, especially in my left arm (like I slept on it wrong but the dead feeling does not go away). Every day since August it has gotten worse and worse. I have had countless blood tests; I have seen a rheumatologist who ran further blood tests to check for immunity issues. Apparently I am perfectly healthy! 

Then, about a month ago, I began vomiting, maybe 4 or 5 times a week. My doctor just keeps upping the Gabapentin she recently prescribed me. From 100 to now 900 mg a day in less than 2 months. I checked over my own blood results and looked up everything I could. I had one result, ALP, that was low. When I looked it up it said that was an indicator for Celiac Disease. I asked my doctor about Celiac but she dismissed that idea. But I keep getting worse, literally daily! 

Saturday, I cut out all gluten. I figured it couldn't hurt. No one NEEDS gluten. It appears that my symptoms are now going in reverse. They are fading in the reverse order they presented. They are by no means gone and I am still in pain all over, but I can feel a difference. 

Anyone had a similar experience? I am 39 years old and have never had dietary issues aside from IBS caused by stress. Please advise if you have had a similar experience. I hate not knowing what is going on with my body and I hate taking medication of any kind! Thank you for reading all this! 

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mommida Enthusiast
mommida
Posted

A viral illness can trigger Celiac.  Gluten is a complex protein chain for the body to break down.  Avoiding gluten when the body is under stress from an auto-immune disease seems to improve symptoms in many. 

If you want to get a "gold standard" medical diagnoses, you have to continue eating gluten.  Your doctor should have tested you when you requested it with IBS and joint pain symptoms.

bartfull Rising Star
bartfull
Posted

Yes. If it were me I would continue eating gluten and DEMAND the full celiac panel. After all, you are paying the doctor so that makes you in effect, the boss. If your doctor still refuses, tell him or her you are going to find a doctor who WILL.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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