Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where do I start??

canadianjem

Recommended Posts

canadianjem Rookie
canadianjem
Posted

Where do I start??or is it even and issue??

 

Summary: Recently diagnosed Celiac.  Gut has Healed after one year.  Huge under eye circles.

Does this mean I have an allergy to something else as well?

 

My family doctor has never had a celiac patient and will not refer me to a specialist.  I have asked for an allergy test but he refuses?

 

Does anyone know if an allergy test can pick up things like dairy, corn, eact.?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darren Apprentice
Darren
Posted

Fellow Canadian!  Have you tried contacting the doctor that did your biopsy for help? They might be able to assist you to see someone for allergy testing or at least offer insight. If not perhaps time to visit another doctor, not all doctors are good doctors and if yours isn't helping them get a second opinion. It's free :) 

cyclinglady Grand Master
cyclinglady
Posted

You might have some intolerances or allergies, but testing is not very accurate.  A food diary can help.    Do you have other allergy symptoms besides the dark circles?  Asthma, swelling, hives, rashes, itching,  tummy aches, throat swelling?  Your circles might be genetic.  My cousin has always had them.  She uses a good concealer.  

canadianjem Rookie
canadianjem
Posted
  • Author

Ahhhhh makeup...the answer to almost everything. Te he he he

I do get rashes from time to time..strange little circles in random places like inner arm, leg, boob..lol

I have been reading as much about Celiac as I can, as my doctor and nutritionist do not offer much help at all besides "go online and order some books".

I have been reading that dairy is/could be harsh on the stomach after eliminating gluten and people often develop an intolerance??!!

Guess i am just being a nervous Nancy about being as healthy as I can

cyclinglady Grand Master
cyclinglady
Posted

Dairy can be a problem for some celiacs (non-celiacs are often lactose intolerant too), but after a year of healing, your gut should be able to handle lactose unless you are genetically predisposed to being lactose intolerant.    You could have an issue with milk proteins. That can cause dark eyes, hives, rash, eczema, breathing difficulties, swelling.  So, you can remove dairy (milk protein)  for a few weeks to see if your "raccoon" eyes improve.  Our member StephanieL has an anaphylactic kid (life-threatening allergies) who has celiac disease.  She is our expert on allergies.  Testing is hit or miss per her research.  Best to keep a journal.  But you can always try getting in to see an allergist. 

Are you talking hives?  Do they itch?  Strange round circles sounds like fungus (ringworm).

I hope you find your answers! 

  • 5 weeks later...
SLLRunner Enthusiast
SLLRunner
Posted
Quote

Are you talking hives?  Do they itch?  Strange round circles sounds like fungus (ringworm).

I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance.

About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, thought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occasionally.

I know for a fact they were not ringworm because there is no place I would have been exposed to ringworm--I'm never around children.

I have also gotten rashes in other places as well since I was kid, including hives. No doctor could ever figure out why. 

 

Edited for typos and clarify.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,675
    • Most Online (within 30 mins)
      7,748
    Kimmber
    Newest Member
    Kimmber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.