Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy....nervous?!

Jnylny

Recommended Posts

Jnylny Newbie
Jnylny
Posted

Hello! I first posted in October with lab resultsbut have been frequently checking in on other posts and learned alot about celiac disease. I am hoping for a little help/support. 

My bloodwork indicates celiac. I am scheduled for my endoscopy this Thursday and am looking for reassurance that this should be an "easy" procedure.  It was explained I will be asleep and should only last 15 or so until finished. I'm not sure if I am more nervous about the procedure or the results. Any advice or words of wisdom would be greatly appreciated! Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

No worries!  It is easy!  Nothing to it.  I had both an endoscopy and a colonoscopy at the same time.  It was the prep for the colonoscopy that was hard.  How much jello, lemon Gatorade and chicken broth can you stand?  ?

It will be over before you know it!

Whatever the outcome, you will be one step closer to being well!  Hugs! 

CherylS Apprentice
CherylS
Posted

I had my endoscopy on Friday, with a colonoscopy added in for a little more excitement!

It took a little over a half hour for both procedures.  I'm not sure how many biopsies she did on the endoscopy, when I asked I was told several.  

Think of it this way, whatever is going on has and will be going on if you know or not, so you might as well know what's going on.

squirmingitch Veteran
squirmingitch
Posted

Yup, endoscopies are a piece of cake. Nothing after midnight & you will be out for the procedure & it will be quick. Then you can drink, go home & eat & relax. 

canadianjem Rookie
canadianjem
Posted

I got the "Michael Jackson drug" for my endoscopy.  Apparently, I wasn't fully asleep and asked the doctor to not put a scope that has already been in someone else's butt down my throat...I may get germs!!!

*****Sooooooo embarrassed ********

Long story short...was super easy and fast and thankfully don't remember a thing.

CherylS Apprentice
CherylS
Posted
1 hour ago, canadianjem said:

I got the "Michael Jackson drug" for my endoscopy.  Apparently, I wasn't fully asleep and asked the doctor to not put a scope that has already been in someone else's butt down my throat...I may get germs!!!

*****Sooooooo embarrassed ********

Long story short...was super easy and fast and thankfully don't remember a thing.

They put some sort of thing in my mouth to hold it open for the scope, it made me drool because I couldn't close my mouth to swallow.  I had the propofol as well.  I do remember trying to move the pillow (I was on my left side) because there was drool on it, lol.  The things we worry about while drugged up, haha.

 

Jnylny Newbie
Jnylny
Posted
  • Author

Thank you all very much for replying with kindness and humor!! Tomorrow's the day and I am ready for some answers!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CherylS Apprentice
CherylS
Posted
1 hour ago, Jnylny said:

Thank you all very much for replying with kindness and humor!! Tomorrow's the day and I am ready for some answers!!

My GI doctor has a patient portal where you can view results, send messages, etc.  On my care plan it said something about awaiting pathology results from small intestine and cecum.  They took that goal down yesterday.  It means my results are there, but they didn't post them in the results section.  It's making me anxious.  The day of the procedures I asked them to please mail me a hard copy when they received them and they said they would.  I'm afraid they are going to make me wait until my follow up appointment on January 21 to get my results.  I'm not a patient person.

jessicacope Newbie
jessicacope
Posted

When they do the endoscopy, what are they looking to find in regards to Celiac?  Sorry, just learning about all of this. :(  

Praying your procedure goes well, CherylS!

kareng Grand Master
kareng
Posted
1 hour ago, jessicacope said:

When they do the endoscopy, what are they looking to find in regards to Celiac?  Sorry, just learning about all of this. :(  

Praying your procedure goes well, CherylS!

This website has a lot of good info

 

Open Original Shared Link

 

 

Jnylny Newbie
Jnylny
Posted
  • Author

CherylS, I feel for you!  Waiting is the worst!!  it seems that's all I've done this fall and early winter...wait for an appt, wait for blood work results, wait to get specialist appt, wait for endoscopy.  I hope that you are able to see the report soon!

Jessiacope, they are looking for damage to the villi in your small intestine.  They use the Marsh Scale to identify the extent of damage caused due to celiac disease.  

Jnylny Newbie
Jnylny
Posted
  • Author

You all were very correct! The scope was easy for me...I was out like a light and don't remember anything. I was told I asked why I wasn't home yet but I don't remember that:) 

Anyway, the Dr. took 4 biopsies and on his report noted mucosal damage and stippling of the duodenum typical of celiac but I must wait for biopsy results...and in the meantime I have begun to eat gluten free because the writing is on the wall for me....

squirmingitch Veteran
squirmingitch
Posted

Yay! It's over! Happy gluten free eating!!!!!!

CherylS Apprentice
CherylS
Posted
13 hours ago, Jnylny said:

You all were very correct! The scope was easy for me...I was out like a light and don't remember anything. I was told I asked why I wasn't home yet but I don't remember that:) 

Anyway, the Dr. took 4 biopsies and on his report noted mucosal damage and stippling of the duodenum typical of celiac but I must wait for biopsy results...and in the meantime I have begun to eat gluten free because the writing is on the wall for me....

Wow, so glad you got results so quickly!  Still waiting here, lol.

Are you feeling better gluten free?

Jnylny Newbie
Jnylny
Posted
  • Author

@CherylS, you're still waiting?! :( very sorry to hear that. 

My dr that performed the scope gave me a report to take home plus on the discharge paper it was handwritten about the mucosal damage. He also spoke to my husband about what he saw while I was sleeping off the meds. 

No call about the labs yet but like I said...it's all there... I am feeling a bit better. My stomach is already not as upset as before. Just trying to adjust to my new normal eating habits!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    2. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    3. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    4. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    5. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.